The essential tremor registry is a simple – yet powerful – way ET patients can help the research community. A few minutes of your time assists in the creation of a comprehensive database of ET patients that helps researchers better understand the condition. When you register and opt in, your de-identified medical information (meaning it does not include any identifying information) is pooled with information from all other participants. You continue to own your data, and you can opt out at any time. What an easy way to contribute to essential tremor research efforts! Click here to learn more about the IETF essential tremor national registry …or here to participate.
Thanks for sharing! I’ve looked at the IETF web site many times and did not realize there was a registry.