Join Us on December 4th for Two Exciting Presentations via Zoom!

Saturday, December 4, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Understanding Essential Voice Tremor (EVT)
and the Benefits of Speech Therapy
presented by Sylvia Fisher,
Speech-Language Pathology Director, Hartford Healthcare Rehabilitation Network
~and~
The Readi-Steadi® Orthotic Glove System for Hand Tremor
presented by its Inventor Krista Madere,
Licensed Occupational Therapist and Certified Hand Therapist

Being able to communicate effectively is one of the most important life skills. Essential tremor can result in involuntary movements that impact the larynx, vocal folds and throat causing the voice to tremble. This presentation will review the symptoms of vocal tremor and how speech therapy can help you regain control of your voice.

Sylvia Fisher is the Speech-Language Pathology Program Director for the Hartford Healthcare Rehabilitation Network. She received her master’s degree in Communication Disorders from Southern Connecticut State University and has worked with adults across all levels of rehabilitative care for more than 20 years.

Sylvia has vast experience working with individuals affected by neurological conditions resulting in communication and swallowing disorders. Her passion for innovative and best practice has led to standardized programs for individuals with Parkinson’s Disease such as SPEAKOUT!, respiratory muscle training, surface electromyography and biofeedback systems, as well as other exercise-based rehabilitative programs to treat speech, voice and swallowing disorders.

Sylvia serves on the Connecticut Speech and Hearing Association Medical Speech Pathology Committee and is a member of the American Hearing and Speech Association.

~then~

Krista Madere, LOTC, CHT will discuss her patented Ready-Steadi® Orthotic Glove System, the only assistive device for hand tremor currently covered by most insurance companies (including Medicare and the VA). Krista states “At the completion of this presentation, attendees will…understand the basic anatomy of overactive muscles commonly observed in patients with tremor disorders. Finally, they will understand the rationale of how fine motor and hand control is effectively restored as a result of this device.

Krista has worked in various in-patient and out-patient settings over the past 20 years managing the treatment of adults diagnosed with various orthopedic and neurological disorders. As a certified hand therapist, she has advanced knowledge and experience primarily of the elbow, wrist, and hand.

In response to a need – and after watching her patients and grandfather suffer – Krista invented and patented the Readi-Steadi® Orthotic Glove System in 2015. Each unique system is custom fabricated for the individual and is based on proven neurological principles. She is honored to collaborate care with movement disorder specialists and therapists throughout the country and remains dedicated to each individual fitted so they achieve maximum functional benefit.

Inquiries are invited!
Registration is required no later than noon on Wednesday, December 1st!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Mark Your Calendar for Our December Meeting!

Our next Essential Tremor Support Group meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, December 4th. As much as we’d love to meet in person, we’ll continue to monitor the situation closely and will likely meet via Zoom. Our speaker and topic will be announced shortly… but we do hope you’ll save the date and plan to join us!

Our Next Virtual Meeting is October 2nd. Please Join Us!

Saturday, October 2, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Diagnosis and Management of Essential Tremor:
The Method to the Madness!

presented by Movement Disorders Specialist Dr. Benjamin Dorfman

You won’t want to miss this presentation and discussion of how a movement disorders specialist determines that a patient has essential tremor vs other related issues, and how a course of treatment is determined!

Dr. Benjamin Dorfman is a board-certified movement disorders specialist at the Chase Family Movement Disorders Center, part of Hartford HealthCare. His areas of interest include Parkinson’s disease, essential tremor, deep brain stimulation, dystonia, facial spasm, spasticity, botulinum toxin injections, restless legs syndrome, gait disorders, myoclonus, tardive dyskinesia, and tics.

Dr. Dorfman received his medical degree from the Rutgers New Jersey Medical School in Newark, New Jersey, followed by neurology residency at the Albert Einstein College of Medicine in Bronx, New York and a movement disorders fellowship at the Icahn School of Medicine at Mount Sinai in Manhattan, New York. He has authored numerous publications on movement disorders and has a special interest in education.

A member of the American Academy of Neurology and the International Parkinson and Movement Disorders Society, Dr. Dorfman lives in West Hartford, Connecticut with his wife and two children.

Inquiries are invited!
Registration is required no later than noon on Wednesday, September 29th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save the Date for our Next Meeting!

Our next Essential Tremor Support Group meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, October 2nd. We’re hoping to finally meet in person again, but given the Delta variant, will monitor the situation closely. The speaker and topic will be announced shortly. We do hope you’ll save the date and plan to join us!

Join Us for Our August 7th Virtual ET Support Group Meeting!

Saturday, August 7, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Medications for Essential Tremor
presented by Movement Disorders Specialist Sulada Kanchana, M.D., Ph.D.

At this virtual meeting, Dr. Kanchana will review and discuss treatment options for the medical management of Essential Tremor.

Su Kanchana, M.D., Ph.D., a movement disorders specialist, is Director of Program Expansion & Outreach for Hartford HealthCare’s Chase Family Movement Disorder Center. She has special interests in Parkinson’s disease, Tremors, Deep Brain Stimulation (DBS), and Botulinum toxin therapy.

Before joining Hartford HealthCare, Dr. Kanchana was Co-Director of the Movement Disorders Program at SUNY Update Medical Center, Director of the Deep Brain Stimulation Program at Northwell Health in Long Island, Director of the Movement Disorders Program at Reading Hospital and Medical Center, and Co-Director of the Movement Disorders Program at Lehigh Neurology in Allentown, PA. While a member of the Movement and Inherited Neurological Disorders at the University of Rochester Medical Center, she was the founder and advisor of the Twin Tiers Parkinson Group in Big Flats, NY.

Dr. Kanchana earned Masters and Doctoral Degrees in biology and a Doctoral of Medicine at Wayne State University and School of Medicine. She completed a neurology residency at the University of Wisconsin-Madison, and a fellowship in movement disorders at the National Institute of Neurological Disorders and Strokes, National Institutes of Health (NIH).

Inquiries are invited!
Registration is required no later than noon on Wednesday, August 4th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule August 7th On Your Calendar!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, August 7th, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Save the Date!

Whether it’s to be in person or via Zoom …unfortunately that is still the question! It’s most likely to be another Zoom event for us, but in either case, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, June 5th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.

Mark Your Calendar for April 3rd!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, April 3rd, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Please Join Us For Our Virtual Meeting on February 6th

Saturday, February 6, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Meet Biotech Company Praxis…
and learn about Investigational Drug PRAX-944

presented by Gabriel Belfort M.D., Ph.D. and Lisa Huang, Ph.D.

At this virtual meeting, you will learn about Praxis, a biotechnology company studying an investigational treatment for Essential Tremor. PRAX-944 belongs to a new class of drugs called T-type calcium channel blockers. It has been shown to be effective in animal models of Essential Tremor by blocking calcium channels that are essential to the rhythmic brain activity that causes tremor activity. If PRAX-944 can similarly block T-type calcium channels in patients with ET, it is possible that the abnormal rhythmic activity in the brain – and the subsequent tremors – may improve! Studies with PRAX-944 in ET patients have been initiated. You won’t want to miss this meeting to learn more!

Gabriel Belfort, M.D., Ph.D., is a Senior Medical Director at Praxis and is responsible for the design, conduct, and data analysis of studies in the PRAX-944 Essential Tremor program. He has been in the industry for eight years and with Praxis for two. He received an M.D. and a Ph.D. from Boston University, residency training in neurology from the Beth Israel Deaconess Medical Center, and postdoctoral training from MIT. Gabi was involved in the development of Brexanolone, now FDA approved for the treatment of post-partum depression.

Lisa Huang, Ph.D. is the commercial lead for the PRAX-944 Essential Tremor program. She has been in the industry for eight years, where she founded a number of biotechs, such as Magenta, Gemini Therapeutics, and Q32 Bio Inc. to address diseases with high clinical need. A human geneticist by training, Lisa obtained her PhD Degree from Johns Hopkins.

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

 

Save the Date!

Whether it’s to be in person or via Zoom …that unfortunately is still the question! But in either event, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, February 6th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.