We’re Exploring Life Hacks at our October 1st Meeting!

Saturday, October 1, 2022
1:00 – 3:00 p.m.
via Zoom

There is a Way!
..we Just Have to Find It!

presented by Nichole Wilton (aka Shakey Nan)

Meet Shakey Nan in her own words:
“My name is Nichole Wilton and I am 51 yrs old in a few weeks. I live an hour inland from Sydney in Australia. I have an amazing husband, 4 biological children, 1 stepson and 4 grandchildren so far. I have had ET all my life or to me I was just a nervous person until I was diagnosed at 27yrs old. Having still, to this day, lived longer thinking it was “just me”, it is actually a normal way of life to me, I have never known a day without shaking. ET is hereditary in my family from both my Mother and Fathers sides although I am the only to have it from birth. Now all 4 of my children have ET and I want to help find that cure now more than ever before my grandchildren get it too.”

At this meeting, Nichole will share many of the work-arounds she’s developed that help with activities of daily living.

We both invite you to bring your questions and personal solutions to this dynamic discussion.

​Inquiries are invited!
Registration is required no later than noon on Wednesday, September 28th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save the Date!

Be sure to save the date for our next regularly scheduled CT Essential Tremor Support Group meeting: 1:00-3:00 p.m. on Saturday, October 1, 2022! We’ll be discussing and sharing life hacks for living with ET.. so you won’t want to miss it! Details to follow soon.

A note concerning our meetings: Because of our large attendance, we need to convene in hospital conference rooms.. so until our Connecticut hospitals re-open their facilities to large outside groups, we’ll continue to meet via Zoom. That being said, please know that we’re anxious to meet in person again and will continue to monitor the situation so we can make that happen as soon as possible. Although Zoom is a viable option for many of us, we sorely miss those of our long-term members who, for various reasons, don’t participate electronically.

Join Us for our August 6th Virtual Meeting!

Saturday, August 6, 2021
1:00 – 3:00 p.m.
via Zoom

Development of a New Potential Medicine for Essential Tremor:
Why is it Taking so Long?

presented by Dr. Mandy Sterkel and Dr. Michelle Baladi
Jazz Pharmaceuticals

In this overview on drug development and clinical trial design, Drs. Sterkel and Baladi will cover some key considerations when designing clinical trials. They will discuss the iterative process and collaborative nature of drug development, highlighting the numerous stakeholders Jazz Pharmaceuticals work with along the way, including patients, caregivers, and regulatory agencies. They will also expand on the rationale for developing JZP385 for patients with essential tremor and discuss Jazz’s recently initiated Phase 2b clinical trial, the EveresT Study. This presentation is for anyone interested in learning more about the drug development process and a novel potential medicine for the treatment of essential tremor..

Dr. Mandy Sterkel is a Clinical Scientist within the Neuroscience Clinical Development department at Jazz Pharmaceuticals. She holds a Ph.D. in Psychology from West Virginia University and completed her post-doctoral fellowship in Psychiatry and Behavioral Sciences at Stanford University. Dr. Sterkel has been at Jazz since 2016, and currently works as the Clinical Science Lead on the JZP385 Essential Tremor program. Dr. Sterkel lives in San Jose, California and in her free time she enjoys running, baking, and spending time with her husband, 1-year old son, and dog.

Dr. Michelle Baladi joined Jazz Pharmaceuticals in 2015 and is currently the global development lead for JZP385, which is a T-type calcium channel modulator in development for the treatment of Essential Tremor. Dr. Baladi holds a Ph.D. in Pharmacology from the University of Texas Health Science Center and has predominantly focused on neuroscience research during her career in the academic and pharmaceutical world. Dr. Baladi resides in the Clinical Development Neuroscience group at Jazz and lives in San Francisco, California. In her free time, she enjoys spending time with family and friends, hiking, attending music concerts, traveling, and reading.

​Inquiries are invited!
Registration is required no later than noon on Wednesday, August 3rd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Plan to Join Us on August 6th!

The next regularly scheduled CT Essential Tremor Support Group meeting is set for 1:00 – 3:00 p.m. on Saturday, August 6th. Our speakers and program will be announced shortly.. but we do hope you’ll save the date and plan to join us!

We’ve Scheduled 2 Great Presentations for our June 4th Meeting!

Saturday, June 4, 2022
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Botulinum Toxin Treatment for Essential Tremor
presented by Duarte Machado, MD
Co-Director of Hartford HealthCare’s
Chase Family Movement Disorders Center

~and~

Mindfully Stress-Less
presented by Sharon Gutterman, PhD
Mindful Wow!

Botulinum Toxin Treatment for Essential Tremor
At this meeting, Dr. Machado will review the safety and efficacy of botulinum toxin treatment, starting with a brief summary of this topic and followed by new data since the topic was last reviewed by our group over three years ago (in April, 2019).

Dr. Duarte Machado, who we’re fortunate to have as volunteer Medical Director for our CT Essential Tremor Support Group, is a Neurologist who specializes in Movement Disorders.

Co-Director of Hartford HealthCare’s Ayer Neuroscience Institute Chase Family Movement Disorders Center, Dr. Machado is Board Certified by the American Board of Psychiatry and Neurology. After completing his undergraduate degree at Trinity College, Dr. Machado attended the University of Connecticut School of Medicine, followed by an Internship at Yale-New Haven Hospital; Internal Medicine and Residency at Yale-New Haven Hospital; Neurology and a Fellowship at Yale University School of Medicine; Movement Disorders.

He is a member of several Professional Organizations:

  • American Neurological Association
  • American Academy of Neurology
  • International Parkinson and Movement Disorder Society
  • National Physicians Alliance
  • New Haven County Medical Association

Dr. Machado’s areas of interest include:

  • Essential Tremor
  • Parkinson Disease
  • Chorea
  • Dystonia
  • Tourette Syndrome
  • Huntington Disease
  • Myoclonus
  • Restless Legs Syndrome
  • Gait Ataxia
  • Spinocerebellar Ataxias
  • Botulinum Toxins
  • Deep Brain Stimulation

~then~

Mindfully Stress-Less!
Stop! What are you thinking right now? Dwelling on past regrets or worrying about the future? Research findings suggest that living mindfully in the present moment can be an antidote to stress and anxiety (both of which we in the ET Community know will negatively impact our tremor!), as well as a tool for cultivating health benefits. In our time together, we will take a look at foundational principles of mindfulness, practice meditation, explore truisms about the human condition, experience the triangle of awareness, and welcome new ways to surf the waves of life’s challenges.

Dr. Sharon Gutterman’s academic background includes a Ph.D. in medical education, Masters degrees in counseling and adult educational program development, and a Bachelor’s degree with honors in psychology.

Her training in mindfulness includes an intensive mindfulness-based stress reduction group training program taught by Jon Kabat-Zinn and Saki Santorelli. Completing the Practicum at The Center for Mindfulness at The University of Massachusetts Medical Center, her teaching has been greatly influenced by attending numerous workshops and retreats taught by inspiring teachers.

​Dr. Gutterman’s advanced certificates include:

  • Mindfulness-Based Stress Reduction Intensive and Practicum (Center for Mindfulness/U.Mass. Medical Center)
  • Mindful Schools Mindfulness Curriculum 
  • Reiki Master, trained in the Usui System of Reiki Healing
  • Yoga Nidra trained at Kripalu
  • Certified Instructor Connecticut Police Academy
  • Certified in administering and consulting with the Myers-Briggs Type Indicator
  • Wellness Committee Internal Medicine Department, University of Connecticut Health Center

You can learn more about Dr. Gutterman and her practice on her website: www.mindfulwow.com/

​Inquiries are invited!
Registration is required no later than noon on Wednesday, June 1st!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule June 4th in Your Calendar!

Be sure to save the date for our next regularly scheduled CT Essential Tremor Support Group meeting: 1:00-3:00 p.m. on Saturday, June 4, 2022! Details will be announced as soon as they’re available.

A note concerning our meetings: Because of our large attendance, we need to convene in hospital conference rooms.. so until our Connecticut hospitals re-open their facilities to large outside groups, we’ll continue to meet via Zoom. That being said, please know that we’re anxious to meet in person again and will continue to monitor the situation so we can make that happen as soon as possible. Although Zoom is a viable option for many of us, we sorely miss those of our long-term members who, for various reasons, don’t participate electronically.

Mark Your Calendar for our April meeting!

Our next Essential Tremor Support Group meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, April 2nd. As much as we’d love to meet in person, we’ll continue to monitor the situation closely and will likely meet via Zoom. Our speaker and topic will be announced shortly… but we do hope you’ll save the date and plan to join us!

Join Us for Our February 5th Meeting!

Saturday, February 5, 2022
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

An Update on Sage-324 (an ET-specific drug in the pipeline)
presented by Dr. Jim Fratantonio
Medical Director in Medical Affairs, Sage Therapeutics

~and~

March is Essential Tremor Month! ..Spreading ET Awareness
presented by Tammy Dodderidge,
Marketing & Communications Manager,
International Essential Tremor Foundation

Sage Therapeutics is a biopharmaceutical company committed to developing novel therapies with the potential to transform the lives of people with debilitating disorders of the brain. Pursuing new pathways with the goal of improving brain health, their depression, neurology and neuropsychiatry franchise programs aim to change how brain disorders are thought about and treated. The Sage mission is to make medicines that matter so people can get better, sooner.

Dr. Jim Fratantonio, Sage Therapeutics Medical Director in Medical Affairs, will update us on Sage-324, a drug in the Sage pipeline that is now at Phase 2 of development. Sage-324 is intended specifically for Essential Tremor, Epileptiform Disorders, and Parkinson’s Disease.

Dr. Fratantonio attended the University of Rhode Island, where he received his doctorate in Pharmacy. He has spent the last six years supporting Medical Affairs organizations in mental health and essential tremor. As a Medical Director in Medical Affairs, some of his responsibilities include providing strategic leadership, conducting scientific training, and engaging in scientific exchange with external experts. His primary goals are to improve access and education to medications to support patient centered medical treatment.

~then~

March is Essential Tremor Awareness Month! We in the ET Community are often frustrated by the lack of awareness of our condition. In spite of the fact that essential tremor is the most common movement disorder and affects 10 million people of all ages in the U.S. alone, the general public – and, sadly, too many medical professionals – have never heard of it! Although ET is 8 times more prevalent than Parkinson’s, we’re sorely missing a celebrity spokesperson ala Michael J. Fox. So how can we, as individuals, help to spread awareness in the comfort of our own home?

Tammy Dodderidge, the International Essential Tremor Foundation’s Marketing & Communications Director, will discuss the many materials IETF can provide. Tammy will also teach us how we can use the IETF’s posters, digital images, emails and social media posts to spread awareness throughout the month of March (and indeed throughout the year).

Tammy earned a BS in Journalism and a Master of Science in Journalism and Integrated Marketing Communications, both from the University of Kansas. A Communications professional and tactical planner, she has 15+ years’ experience developing and leading communications initiatives for corporations and nonprofit organizations.

Inquiries are invited!
Registration is required no later than noon on Wednesday, February 2nd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

March is Essential Tremor Month!

In December 2010, the United States House of Representatives formally passed House Resolution (H.RES.) 1264 officially designating March as National Essential Tremor Awareness Month. This resolution was cosponsored by a bipartisan group of 56 Representatives.

This year, Governor Ned Lamont recognized the impact of Essential Tremor and the work of the International Essential Tremor Foundation by honoring my request and officially proclaiming March 2022 as Essential Tremor Awareness Month in the State of Connecticut:

Essential Tremor Awareness Month - Mar 2022 _v4

Schedule February 5th in Your Calendar!

The next regularly scheduled CT Essential Tremor Support Group meeting is set for 1:00 – 3:00 p.m. on Saturday, February 5th. Our speakers will be researchers from a biopharmaceutical company that’s committed to developing novel therapies that have the potential to transform the lives of people with debilitating disorders of the brain. Plan to join us as we learn about the status of an ET-specific drug they currently have under development. Details will be announced soon.