Join Us for Our August 7th Virtual ET Support Group Meeting!

Saturday, August 7, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Medications for Essential Tremor
presented by Movement Disorders Specialist Sulada Kanchana, M.D., Ph.D.

At this virtual meeting, Dr. Kanchana will review and discuss treatment options for the medical management of Essential Tremor.

Su Kanchana, M.D., Ph.D., a movement disorders specialist, is Director of Program Expansion & Outreach for Hartford HealthCare’s Chase Family Movement Disorder Center. She has special interests in Parkinson’s disease, Tremors, Deep Brain Stimulation (DBS), and Botulinum toxin therapy.

Before joining Hartford HealthCare, Dr. Kanchana was Co-Director of the Movement Disorders Program at SUNY Update Medical Center, Director of the Deep Brain Stimulation Program at Northwell Health in Long Island, Director of the Movement Disorders Program at Reading Hospital and Medical Center, and Co-Director of the Movement Disorders Program at Lehigh Neurology in Allentown, PA. While a member of the Movement and Inherited Neurological Disorders at the University of Rochester Medical Center, she was the founder and advisor of the Twin Tiers Parkinson Group in Big Flats, NY.

Dr. Kanchana earned Masters and Doctoral Degrees in biology and a Doctoral of Medicine at Wayne State University and School of Medicine. She completed a neurology residency at the University of Wisconsin-Madison, and a fellowship in movement disorders at the National Institute of Neurological Disorders and Strokes, National Institutes of Health (NIH).

Inquiries are invited!
Registration is required no later than noon on Wednesday, August 4th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule August 7th On Your Calendar!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, August 7th, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Save the Date!

Whether it’s to be in person or via Zoom …unfortunately that is still the question! It’s most likely to be another Zoom event for us, but in either case, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, June 5th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.

Mark Your Calendar for April 3rd!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, April 3rd, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Please Join Us For Our Virtual Meeting on February 6th

Saturday, February 6, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Meet Biotech Company Praxis…
and learn about Investigational Drug PRAX-944

presented by Gabriel Belfort M.D., Ph.D. and Lisa Huang, Ph.D.

At this virtual meeting, you will learn about Praxis, a biotechnology company studying an investigational treatment for Essential Tremor. PRAX-944 belongs to a new class of drugs called T-type calcium channel blockers. It has been shown to be effective in animal models of Essential Tremor by blocking calcium channels that are essential to the rhythmic brain activity that causes tremor activity. If PRAX-944 can similarly block T-type calcium channels in patients with ET, it is possible that the abnormal rhythmic activity in the brain – and the subsequent tremors – may improve! Studies with PRAX-944 in ET patients have been initiated. You won’t want to miss this meeting to learn more!

Gabriel Belfort, M.D., Ph.D., is a Senior Medical Director at Praxis and is responsible for the design, conduct, and data analysis of studies in the PRAX-944 Essential Tremor program. He has been in the industry for eight years and with Praxis for two. He received an M.D. and a Ph.D. from Boston University, residency training in neurology from the Beth Israel Deaconess Medical Center, and postdoctoral training from MIT. Gabi was involved in the development of Brexanolone, now FDA approved for the treatment of post-partum depression.

Lisa Huang, Ph.D. is the commercial lead for the PRAX-944 Essential Tremor program. She has been in the industry for eight years, where she founded a number of biotechs, such as Magenta, Gemini Therapeutics, and Q32 Bio Inc. to address diseases with high clinical need. A human geneticist by training, Lisa obtained her PhD Degree from Johns Hopkins.

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

 

Save the Date!

Whether it’s to be in person or via Zoom …that unfortunately is still the question! But in either event, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, February 6th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.

Join Us on December 5th for Two Exciting Presentations via Zoom!

Saturday, December 5, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Advancing DBS Therapy to Treat Essential Tremor
presented by Movement Disorder Neurologist Dr. Drew Falconer
~and~
Steadi-Two, Steadiwear’s second-generation tremor stabilization device
presented by Steadiwear Founders Mark Elias and Emile Maamary

At this virtual meeting, Dr. Falconer will discuss the latest advancements to Abbott DBS and the innovations in the way the therapy is delivered and how it is controlled.

Dr. Drew Falconer is Board Certified in Neurology and is a fellowship-trained Movement Disorders Specialist at Georgetown University. Currently he serves as Co-Medical Director at the Inova Parkinson’s and Movement Disorders Center in Virginia. Dr. Falconer specializes in advanced care of patients with essential tremor, Parkinson’s Disease, and other movement disorders. He became interested in neurology and movement disorders after seeing the impact that quality, compassionate care combined with cutting-edge pharmacology and technology could have on a patient’s condition. His goal is to work with his patients to restore the quality of life they deserve.

~then~

Mark Elias and Emile Maamary will explain Steadiwear’s flagship product Steadi-One, an FDA registered Class I medical device that stabilizes the wrist joint for individuals with essential tremor. The battery-free Steadi-One technology was inspired by leading-edge earthquake dampers used in buildings.

Steadiwear Steadi-One Glove

…and present the Steadi-Two, a miniaturized version currently under development with very promising results! It is still battery-free and will be based on magnetic tuned damping technology, a novel class of stabilization systems. The system will weigh under 1 pound. A live demonstration of the Steadi-Two device will be conducted with a vibration simulator. PS: Mark and Emile will also announce plans for their Steadi-Two clinical trial, as well as an exciting opportunity for individuals who participate in its beta release!

Steadiwear Steadi-Two Glove

The Steadiwear Team: Mark Elias – CEO and Co-Founder – has a background in structural engineering and entrepreneurship, while Emile Maamary – CFO and Co-Founder – has a background in marketing and management. After being introduced as neighbors in 2014, the founders discovered that both their families suffer from tremors. A sense of compassion has united them and fueled their resolve to change the game for tremor sufferers by developing groundbreaking tremor stabilization technology. Both Mark and Emile have been working on Steadiwear full time since January 2016.

Inquiries are invited!
Registration is required no later than noon on Wednesday, December 2nd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Please Join Us for Our Virtual Meeting on October 3rd!

Saturday, October 3, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Updates on Essential Tremor
presented by Movement Disorder Neurologist Dr. Leon Meytin

At this virtual meeting, Dr. Meytin will discuss some of the new updates in essential tremor, including several clinical trials currently ongoing, as well as recently published data on non-invasive treatment for essential tremor.

Dr. Leon Meytin, MD, a Board Certified Neurologist, is a fellowship trained Movement Disorder Specialist at Hartford Healthcare. After graduating from West Virginia University School of Medicine, Dr. Meytin completed his neurology residency at Thomas Jefferson University in Philadelphia, PA, followed by a Movement Disorders Fellowship at Mount Sinai Beth Israel in New York, NY.

Dr. Meytin was recently hired by Hartford Healthcare to start a Movement Disorders Center in Stamford, CT as part of Hartford Healthcare’s comprehensive Chase Family Movement Disorders Center. He believes in the holistic approach to treatment, including utilizing physical/occupational therapy, exercise, acupuncture, and social work to treat the entirety of the patient. A member of the American Academy of Neurology and Movement Disorder Society, Dr. Meytin is also fluent in Russian.

Inquiries are invited!
Registration is required no later than noon on Wednesday, September 30th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save October 3rd in Your Calendar!

Whether it’s to be in person or via Zoom …that is the question! But in either case, please plan to join us from 1:00 – 3:00 p.m. on Saturday, October 3rd for our next Essential Tremor Support Group meeting. We’ll get details to you as soon as possible.

Please Join Us for a Virtual Meeting on August 1st!

Saturday, August 1, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

How New Drugs Are Developed, plus an
Update on an ET-specific drug tested in Clinical Trial
presented by Tim Piser, PhD and Amber Trzeciak, MS

Tim Piser, PhD, is the Chief Scientific Officer at Cadent Therapeutics. Tim earned his PhD in pharmacology from the University of Minnesota. He has passionately pursued the discovery and development of neuroscience therapeutics for almost two decades in big pharma and in biotech, most notably at AstraZeneca and FORUM Pharmaceuticals. There, he led neuropharmacology teams and both NDA and nicotinic receptor drug discovery projects and product development teams from lead optimization through Phase 2 trials. Tim leverages collaborative scientific insight and quantitative translational pharmacology to find innovative paths to discover and develop potential breakthrough medicines.

Amber Trzeciak, MS, is Cadent’s Patient Partnership and Advocacy Manager, as well as Executive Assistant to its R&D Department.

At this virtual meeting, Tim and Amber will educate us on how new drugs are created and developed. They will also give us a history of Cadent’s CAD-1883 (an ET-specific drug that has been tested in clinical trial), together with an update on this trial.

Inquiries are invited!
Registration is required no later than noon on Wednesday, July 29th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012