April 4th Meeting Rescheduled!

Please note that the word is RESCHEDULED, not cancelled!

With several cases of COVID-19 (Corona Virus) confirmed in Connecticut – and given our nation’s current state of emergency and CDC guidelines – we have rescheduled our April 4th meeting. (Because the ability to actually see and try the various state-of-the-art assistive devices currently available is so exciting, this agenda is far too important to simply cancel.)

Our June 6th meeting is already booked with another important agenda (details to be announced shortly) …so our Assistive Devices agenda will be rescheduled to our August 1st meeting.

Please be sure to mark your calendars for both June 6th and August 1st because you won’t want to miss either topic …and please stay safe and healthy!

April 4th: A Unique Meeting and a Special Opportunity!

You won’t want to miss our April 4th meeting….it’s a unique format and an awesome opportunity to literally see and try several different assistive devices!

Samples (and in some cases, reps) will be available from:

  1. LiftWare
  2. Tremelo
  3. Steadi-One Glove
  4. Cala Trio
  5. Steady Type
  6. plus a rep from Encora Inc, the group of MIT graduates who will be recruiting people in our area to participate in their study for the development of a new wrist device! (Although based in the Boston area, they are willing to schedule tests in Connecticut.)

…and we’re still working on trying (and hoping) to get participation from the Readi-Steadi glove.

After a brief presentation on all of the above devices, we’ll have each device (and a rep/facilitator) set up at different tables with plenty of time for each of you to have the opportunity to really try and determine which of these amazing developments might be appropriate and life changing for you!

Details of the meeting:

  • Date and time: Saturday, April 4th, 1:00-3:00 p.m.
  • Location: Main Floor Conference Room at Hartford HealthCare Health Center – Cheshire (this is not a hospital, but the beautiful new facility that houses the Cheshire offices of Hartford HealthCare’s Ayer Neuroscience Institute Movement Disorders Center as well as other outpatient programs)
  • Address: 280 South Main Street, Cheshire, CT 06410
  • Parking: large outdoor lot on premises
  • Click here for a map and driving directions

    Registration is requested – Inquiries are invited!

    To register or request information, email Helen Moser or submit the form below.

    The CT essential tremor support group is sponsored byIETF logo tagline 10162012

 

Please Join Us in Bridgeport on December 7th!

Saturday, December 7, 2019
1:00 – 3:00 p.m.

 St. Vincent’s Medical Center
2800 Main Street, Bridgeport, CT

Essential Tremor: Multiple Surgical Options
presented by Mohamad Khaled, MD, MSurg FAANS, AFACS

At this meeting, we will explore and discuss the multiple surgical options available for treating ET and stimulation versus lesioning. For stimulation, Dr. Khaled will present frame-based versus frameless. For lesioning, he will present radiofrequency ablation versus stereotactic radiosurgery versus MRI-guided Focused Ultrasound.

Mohamad Khaled, MD, MSurg, FAANS, AFACS, a Neurosurgeon and Spine Surgeon and Director of Quality at Hartford Healthcare’s Ayer Neuroscience Institute, is an author on the original New England Journal of Medicine paper from 2013 on Focused Ultrasound (which we’ve previously reviewed at our meetings). His highly specialized surgical skills include experience with frameless Deep Brain Stimulation for tremor.

Dr. Khaled comes to Hartford HealthCare from Baystate Health, where he was Director of Functional Neurosurgery and launched the Deep Brain Stimulation Program, the first of its kind in western Massachusetts. He was also an Assistant Professor of Surgery at the University of Massachusetts Medical Center-Baystate.

His areas of clinical interest include Deep Brain Stimulation; epilepsy surgery; cervical, thoracic and lumbar spine surgery, including minimally-invasive spine surgery; cervical spine deformity correction surgery and spine tumors; surgery for pain; and brain tumors. His research has included work on MRI-guided Focused Ultrasound lesioning in Deep Brain Stimulation and comparing radiofrequency, GammaKnife radiosurgery and Focused Ultrasound lesions in the brain.

Dr. Khaled, who is fluent in English and Arabic, earned his medical degree from Ain Shams University in Cairo, Egypt, and completed a residency at Wayne State University/Detroit Medical Center. He also completed fellowships in epilepsy surgery and pediatric neurosurgery at Cleveland Clinic. He is a member of the American Association of Neurological Surgeons and the Congress of Neurological Surgeons.

Registration is requested – Inquiries are invited!
To register or request information, email Helen Moser or submit the form below.

Click here for driving directions and parking information.

The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

St. Vincent’s Medical Center is conveniently located on Main Street, in Bridgeport’s residential north side neighborhood, with easy access from the Merritt Parkway (Route 15) and Interstate-95, as well as the Route 8 & 25 Connector.

  • From the Merritt Parkway:
    Take Exit 48 (Main Street); proceed 2.3 miles south to St. Vincent’s campus, on the left.
  • From I-95:
    Take Exit 27A onto the Route 8 & 25 Connector; take Exit 4 (Lindley St.); turn left onto Lindley and proceed three blocks to Hawley Ave.; turn left onto Hawley and the Medical Center entrance is on the right.
  • From the Route 8 & 25 Connector (southbound):
    Take Exit 5 (Boston Ave.); turn left at end of ramp and proceed to Summit St.; follow Summit to Main and turn left; Medical Center will be on the left.

Blue “H” hospital signs also lead to St. Vincent’s 10-story, white landmark building.

PARKING:

The Patient/Visitor Parking Garage located in front of the Medical Center.

  • Please bring your ticket in with you and have it processed at the Central Cashier located in the Main Lobby Patient Information Desk after the meeting.

Save the Date!

Our next meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, December 7th, at St. Vincent’s Medical Center in Bridgeport. The speaker and topic will be announced shortly… but please save the date on your calendar!

Learn How Acupuncture Can Help ET at Our October 5th Meeting!

Saturday, October 5, 2019
1:00 – 3:00 p.m.

 The Hospital of Central Connecticut
100 Grand Street, New Britain, CT

ACUPUNCTURE AND ESSENTIAL TREMOR
presented by Edwin Brown, LAC

Our October 5th meeting will focus on acupuncture: its history and modern uses, as well as how acupuncture can be a valuable tool in specifically treating Essential Tremor.

Edwin Brown received his Masters in Acupuncture and Oriental Medicine from the New England School of Acupuncture (NESA). In addition to his own practice Healing Ways Acupuncture, Edwin has practicing privileges at Hartford Hospital through his affiliation with the Department of Integrative Medicine.

During his time at NESA, Edwin studied and gained clinical experience in the fields of Japanese acupuncture, Chinese acupuncture, and Chinese herbal medicine. He has spent the last 15 years working in both private clinical and hospital settings. In addition, Edwin spent more than 16 years studying the arts of Judo and Jiujitsu, as well as several years studying and practicing Tai Chi. A thorough understand of how the flow of energy (Ki) affects the body is a central and crucial aspect in both fighting and healing arts. Studying these disciplines has enabled Edwin to more thoroughly understand Ki and has thereby enhanced his ability to better serve his patients on their healing journeys, and on their paths back to realizing a more balanced life.

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

  • From Route 9:
    Take Exit 28 to Route 72 West.
    Take Corbin Avenue Exit (Exit 7).
    Turn left at end of ramp.
    Follow the blue hospital signs up the hill.
    Left onto Hart Street.
    Straight.
    Left onto Linwood Street.
    Take second right onto Grand Street.
    Garage entrance on right.
  • From I-84:
    Take Exit 35 to Route 72 East.
    Take Corbin Avenue Exit (Exit 7).
    Turn left at end of ramp.
    Follow the blue hospital signs up the hill.
    Left onto Hart Street.
    Straight.
    Left onto Linwood Street.
    Take second right onto Grand Street.
    Garage entrance on right.
  • The City parking garage immediately next to the hospital lobby is the most convenient place to park.

Mark your calendar for our next meeting!

You won’t want to miss our next Essential Tremor Support Group meeting. It’s scheduled for Saturday, October 5th, at the Hospital of Central Connecticut in New Britain. Be sure you save the date on your calendar!

Join Us in Hartford on June 1st for a Very Special International Essential Tremor Foundation Education Forum!

Saturday, June 1, 2019
1:00-4:00 pm (Registration Opens at Noon)
Hartford Hospital Education & Resource Center
Heublein Hall
560 Hudson Street, Hartford, CT 06106

Meet the staff of the International Essential Tremor Foundation and join us for this free education forum. There will be vendor exhibits and presentations by local Essential Tremor experts on the diagnostic process, treatment options, current research, assistive devices, coping tips and more. Refreshments will be provided.

PRESENTERS:

  • Patrick McCartney, IETF Executive Director
    Topic: Past, Present & Future of the IETF
  • Duarte Machado, MD, Co-Director, Chase Family Movement Disorders Center,
    Hartford Healthcare Ayer Neuroscience Institute
    Topic: Diagnosis &Treatment Options for Essential Tremor
  • Amy Pace, OTR/L
    Topic: Coping with the Physical and Emotional Effects of ET

REGISTRATION FOR THIS SPECIAL EVENT:

To participate in this free event, you must register with IETF no later than May 29, 2019. This can be done online at essentialtremor.org/seminar […and when you do so, please check “Other” under “How did you hear about our seminar?” and type in CT Essential Tremor Support Group in the text box] or by calling the IETF office at 1 (888) 387-3667… and remember to invite your family and friends to attend this exciting and informative event with you!

Map of Hartford Hospital Campus
Driving Directions