We’ll Discuss 2 Interesting Topics at our December 3rd Meeting!

Saturday, December 3, 2022
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Rehabilitation Strategies and Essential Tremor
presented by Physical Therapist Megan Rood, MSPT, CBIS, CSRS
Hartford Healthcare Rehabilitation Network

~and~

Updates on the Cala Trio Wrist Device
presented by Debbie Donovan, Director, Market Development, HCP
and Liana Hennum, Head of Healthcare Economics Outcomes Research
CalaTrio.com
and Ben, a Cala Trio user, will demonstrate its use and effectiveness

How Does PT and Exercise Impact Essential Tremor?
At this meeting, we will discuss the different types of exercise that can be beneficial for assisting in managing tremor, including strengthening, aquatics and mindfulness. We will also discuss different available wellness classes that are offered and how they may be beneficial for management of ET.

Megan Rood is a Physical Therapist at Hartford HealthCare Rehabilitation Network in Vernon, CT. She has been working in outpatient neurology based clinics since graduating in 2005 from Northeastern University.

Megan is LSVT BIG and Parkinson’s Wellness Recovery certified, providing her with additional education on the treatment and management of movement disorders. She also completed the Parkinson’s Foundation Allied Team Training and is active in developing the standards of treatment and care for Hartford HealthCare Rehab Network. Megan is a Certified Stroke Rehabilitation Specialist and a Certified Brain Injury Specialist, which have both allowed her a better understanding of different neurological diagnoses.

She has presented to patients and caregivers on different topics including Essential Tremor, Balance and Fall Prevention and the Benefits of Physical Therapy for Movement Disorders at the national, state and local levels.

~then~

Updates on the Cala Trio
Cala Trio therapy is the world’s only non-invasive, drug-free, wrist-worn treatment that addresses the root cause of essential tremor with electrical stimulation known as neuromodulation. And the exciting news is that Cala Trio has just been approved for insurance coverage by Medicare and other insurance companies!

At this meeting, Cala Trio user Ben will demonstrate the use – and effectiveness – of this assistive device.

Debbie Donovan (Director, Market Development, HCP) and Liana Hennum (Head of Healthcare Economics Outcomes Research) will present additional information on the device and respond to any questions you may have about the Cala Trio and/or its insurance coverage. Brian Burke (Northeast territory Manager) will also attend.

​Inquiries are invited!
Registration is required no later than noon on Wednesday, November 30th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule December 3rd in Your Calendar!

The next regularly scheduled CT Essential Tremor Support Group meeting is set for 1:00 – 3:00 p.m. on Saturday, December 3rd. Our speakers and program will be announced shortly.. but we do hope you’ll save the date and plan to join us!

A note concerning our meetings: Because of our large attendance, we need to convene in hospital conference rooms.. so until our Connecticut hospitals re-open their facilities to large outside groups, we’ll continue to meet via Zoom. That being said, please know that we’re anxious to meet in person again and will continue to monitor the situation so we can make that happen as soon as possible. Although Zoom is a viable option for many of us, we sorely miss those of our long-term members who, for various reasons, don’t participate electronically.

We’re Exploring Life Hacks at our October 1st Meeting!

Saturday, October 1, 2022
1:00 – 3:00 p.m.
via Zoom

There is a Way!
..we Just Have to Find It!

presented by Nichole Wilton (aka Shakey Nan)

Meet Shakey Nan in her own words:
“My name is Nichole Wilton and I am 51 yrs old in a few weeks. I live an hour inland from Sydney in Australia. I have an amazing husband, 4 biological children, 1 stepson and 4 grandchildren so far. I have had ET all my life or to me I was just a nervous person until I was diagnosed at 27yrs old. Having still, to this day, lived longer thinking it was “just me”, it is actually a normal way of life to me, I have never known a day without shaking. ET is hereditary in my family from both my Mother and Fathers sides although I am the only to have it from birth. Now all 4 of my children have ET and I want to help find that cure now more than ever before my grandchildren get it too.”

At this meeting, Nichole will share many of the work-arounds she’s developed that help with activities of daily living.

We both invite you to bring your questions and personal solutions to this dynamic discussion.

​Inquiries are invited!
Registration is required no later than noon on Wednesday, September 28th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save the Date!

Be sure to save the date for our next regularly scheduled CT Essential Tremor Support Group meeting: 1:00-3:00 p.m. on Saturday, October 1, 2022! We’ll be discussing and sharing life hacks for living with ET.. so you won’t want to miss it! Details to follow soon.

A note concerning our meetings: Because of our large attendance, we need to convene in hospital conference rooms.. so until our Connecticut hospitals re-open their facilities to large outside groups, we’ll continue to meet via Zoom. That being said, please know that we’re anxious to meet in person again and will continue to monitor the situation so we can make that happen as soon as possible. Although Zoom is a viable option for many of us, we sorely miss those of our long-term members who, for various reasons, don’t participate electronically.

Join Us for our August 6th Virtual Meeting!

Saturday, August 6, 2021
1:00 – 3:00 p.m.
via Zoom

Development of a New Potential Medicine for Essential Tremor:
Why is it Taking so Long?

presented by Dr. Mandy Sterkel and Dr. Michelle Baladi
Jazz Pharmaceuticals

In this overview on drug development and clinical trial design, Drs. Sterkel and Baladi will cover some key considerations when designing clinical trials. They will discuss the iterative process and collaborative nature of drug development, highlighting the numerous stakeholders Jazz Pharmaceuticals work with along the way, including patients, caregivers, and regulatory agencies. They will also expand on the rationale for developing JZP385 for patients with essential tremor and discuss Jazz’s recently initiated Phase 2b clinical trial, the EveresT Study. This presentation is for anyone interested in learning more about the drug development process and a novel potential medicine for the treatment of essential tremor..

Dr. Mandy Sterkel is a Clinical Scientist within the Neuroscience Clinical Development department at Jazz Pharmaceuticals. She holds a Ph.D. in Psychology from West Virginia University and completed her post-doctoral fellowship in Psychiatry and Behavioral Sciences at Stanford University. Dr. Sterkel has been at Jazz since 2016, and currently works as the Clinical Science Lead on the JZP385 Essential Tremor program. Dr. Sterkel lives in San Jose, California and in her free time she enjoys running, baking, and spending time with her husband, 1-year old son, and dog.

Dr. Michelle Baladi joined Jazz Pharmaceuticals in 2015 and is currently the global development lead for JZP385, which is a T-type calcium channel modulator in development for the treatment of Essential Tremor. Dr. Baladi holds a Ph.D. in Pharmacology from the University of Texas Health Science Center and has predominantly focused on neuroscience research during her career in the academic and pharmaceutical world. Dr. Baladi resides in the Clinical Development Neuroscience group at Jazz and lives in San Francisco, California. In her free time, she enjoys spending time with family and friends, hiking, attending music concerts, traveling, and reading.

​Inquiries are invited!
Registration is required no later than noon on Wednesday, August 3rd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Plan to Join Us on August 6th!

The next regularly scheduled CT Essential Tremor Support Group meeting is set for 1:00 – 3:00 p.m. on Saturday, August 6th. Our speakers and program will be announced shortly.. but we do hope you’ll save the date and plan to join us!

We’ve Scheduled 2 Great Presentations for our June 4th Meeting!

Saturday, June 4, 2022
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Botulinum Toxin Treatment for Essential Tremor
presented by Duarte Machado, MD
Co-Director of Hartford HealthCare’s
Chase Family Movement Disorders Center

~and~

Mindfully Stress-Less
presented by Sharon Gutterman, PhD
Mindful Wow!

Botulinum Toxin Treatment for Essential Tremor
At this meeting, Dr. Machado will review the safety and efficacy of botulinum toxin treatment, starting with a brief summary of this topic and followed by new data since the topic was last reviewed by our group over three years ago (in April, 2019).

Dr. Duarte Machado, who we’re fortunate to have as volunteer Medical Director for our CT Essential Tremor Support Group, is a Neurologist who specializes in Movement Disorders.

Co-Director of Hartford HealthCare’s Ayer Neuroscience Institute Chase Family Movement Disorders Center, Dr. Machado is Board Certified by the American Board of Psychiatry and Neurology. After completing his undergraduate degree at Trinity College, Dr. Machado attended the University of Connecticut School of Medicine, followed by an Internship at Yale-New Haven Hospital; Internal Medicine and Residency at Yale-New Haven Hospital; Neurology and a Fellowship at Yale University School of Medicine; Movement Disorders.

He is a member of several Professional Organizations:

  • American Neurological Association
  • American Academy of Neurology
  • International Parkinson and Movement Disorder Society
  • National Physicians Alliance
  • New Haven County Medical Association

Dr. Machado’s areas of interest include:

  • Essential Tremor
  • Parkinson Disease
  • Chorea
  • Dystonia
  • Tourette Syndrome
  • Huntington Disease
  • Myoclonus
  • Restless Legs Syndrome
  • Gait Ataxia
  • Spinocerebellar Ataxias
  • Botulinum Toxins
  • Deep Brain Stimulation

~then~

Mindfully Stress-Less!
Stop! What are you thinking right now? Dwelling on past regrets or worrying about the future? Research findings suggest that living mindfully in the present moment can be an antidote to stress and anxiety (both of which we in the ET Community know will negatively impact our tremor!), as well as a tool for cultivating health benefits. In our time together, we will take a look at foundational principles of mindfulness, practice meditation, explore truisms about the human condition, experience the triangle of awareness, and welcome new ways to surf the waves of life’s challenges.

Dr. Sharon Gutterman’s academic background includes a Ph.D. in medical education, Masters degrees in counseling and adult educational program development, and a Bachelor’s degree with honors in psychology.

Her training in mindfulness includes an intensive mindfulness-based stress reduction group training program taught by Jon Kabat-Zinn and Saki Santorelli. Completing the Practicum at The Center for Mindfulness at The University of Massachusetts Medical Center, her teaching has been greatly influenced by attending numerous workshops and retreats taught by inspiring teachers.

​Dr. Gutterman’s advanced certificates include:

  • Mindfulness-Based Stress Reduction Intensive and Practicum (Center for Mindfulness/U.Mass. Medical Center)
  • Mindful Schools Mindfulness Curriculum 
  • Reiki Master, trained in the Usui System of Reiki Healing
  • Yoga Nidra trained at Kripalu
  • Certified Instructor Connecticut Police Academy
  • Certified in administering and consulting with the Myers-Briggs Type Indicator
  • Wellness Committee Internal Medicine Department, University of Connecticut Health Center

You can learn more about Dr. Gutterman and her practice on her website: www.mindfulwow.com/

​Inquiries are invited!
Registration is required no later than noon on Wednesday, June 1st!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule June 4th in Your Calendar!

Be sure to save the date for our next regularly scheduled CT Essential Tremor Support Group meeting: 1:00-3:00 p.m. on Saturday, June 4, 2022! Details will be announced as soon as they’re available.

A note concerning our meetings: Because of our large attendance, we need to convene in hospital conference rooms.. so until our Connecticut hospitals re-open their facilities to large outside groups, we’ll continue to meet via Zoom. That being said, please know that we’re anxious to meet in person again and will continue to monitor the situation so we can make that happen as soon as possible. Although Zoom is a viable option for many of us, we sorely miss those of our long-term members who, for various reasons, don’t participate electronically.

Please Join Us on April 2nd for a Dynamic Panel Discussion!

Saturday, April 2, 2022
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Ever wonder what it’s really like to undergo Deep Brain Stimulation?
Have questions about patients’ pre-op and operating room experiences?
Want to know whether actual patients are pleased with their results?
Wish you could talk to someone who’s actually experienced DBS?

This is your golden opportunity to do just that!

We’ll start with
An Overview of Deep Brain Stimulation Surgery
..how it works and how the surgical procedure is performed
presented by Neurosurgeon Dr. Patrick Senatus
Medical Director of the DBS Program
at Hartford Healthcare’s Ayer Neuroscience Institute

~followed by~

A panel of 8 of our group members who’ve undergone DBS
They will discuss their journey and respond to your questions!

~and~

We’ll end with a brief presentation and update
on a cutting-edge Yale research study using PET imaging
to investigate brain changes in ET with a new biomarker
presented by Dr. Sheida Koohsari, Yale PET Center
Department of Radiology & Biomedical Imaging
Yale University School of Medicine

Dr. Patrick Senatus is Medical Director of the Deep Brain Stimulation Clinic at Hartford Healthcare’s Ayer Neuroscience Institute, as well as Owner of a New York City Practice Altus Neurosurgery & Spine, LLC. Prior to these positions, he was a neurosurgeon for Eastern Orthopaedics & Sports Medicine and in the Neurosurgery Department of the UCONN Medical Group.

Dr. Senatus received a Bachelor of Arts Degree in Biochemical Sciences (Magna Cum Laude) from Harvard College, a Doctor of Philosophy Degree in Neurobiology from Harvard Graduate School of Arts and Sciences, and a Doctor of Medicine Degree from Harvard Medical School.

In addition to numerous awards and honors, his past academic appointments include Chief of Neurosurgery at Eastern Connecticut Health Network, Assistant Clinical Professor at Yale New Haven Hospital, Graduate School Faculty at UCONN’s Department of Neuroscience, Assistant Professor of Surgery for the Division of Neurosurgery at UCONN Health Center, Director of Functional and Restorative Neurosurgery at UCONN Health Center’s Department of Surgery, Clinical Fellow in Stereotactic and Functional Neurosurgery at Cleveland Clinic Foundation Center for Neurological Restoration, and Chief Resident in Neurological Surgery at Columbia-Presbyterian Medical Center.

Inquiries are invited!
Registration is required no later than noon on Wednesday, March 30th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Mark Your Calendar for our April meeting!

Our next Essential Tremor Support Group meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, April 2nd. As much as we’d love to meet in person, we’ll continue to monitor the situation closely and will likely meet via Zoom. Our speaker and topic will be announced shortly… but we do hope you’ll save the date and plan to join us!