Join Us on December 4th for Two Exciting Presentations via Zoom!

Saturday, December 4, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Understanding Essential Voice Tremor (EVT)
and the Benefits of Speech Therapy
presented by Sylvia Fisher,
Speech-Language Pathology Director, Hartford Healthcare Rehabilitation Network
~and~
The Readi-Steadi® Orthotic Glove System for Hand Tremor
presented by its Inventor Krista Madere,
Licensed Occupational Therapist and Certified Hand Therapist

Being able to communicate effectively is one of the most important life skills. Essential tremor can result in involuntary movements that impact the larynx, vocal folds and throat causing the voice to tremble. This presentation will review the symptoms of vocal tremor and how speech therapy can help you regain control of your voice.

Sylvia Fisher is the Speech-Language Pathology Program Director for the Hartford Healthcare Rehabilitation Network. She received her master’s degree in Communication Disorders from Southern Connecticut State University and has worked with adults across all levels of rehabilitative care for more than 20 years.

Sylvia has vast experience working with individuals affected by neurological conditions resulting in communication and swallowing disorders. Her passion for innovative and best practice has led to standardized programs for individuals with Parkinson’s Disease such as SPEAKOUT!, respiratory muscle training, surface electromyography and biofeedback systems, as well as other exercise-based rehabilitative programs to treat speech, voice and swallowing disorders.

Sylvia serves on the Connecticut Speech and Hearing Association Medical Speech Pathology Committee and is a member of the American Hearing and Speech Association.

~then~

Krista Madere, LOTC, CHT will discuss her patented Ready-Steadi® Orthotic Glove System, the only assistive device for hand tremor currently covered by most insurance companies (including Medicare and the VA). Krista states “At the completion of this presentation, attendees will…understand the basic anatomy of overactive muscles commonly observed in patients with tremor disorders. Finally, they will understand the rationale of how fine motor and hand control is effectively restored as a result of this device.

Krista has worked in various in-patient and out-patient settings over the past 20 years managing the treatment of adults diagnosed with various orthopedic and neurological disorders. As a certified hand therapist, she has advanced knowledge and experience primarily of the elbow, wrist, and hand.

In response to a need – and after watching her patients and grandfather suffer – Krista invented and patented the Readi-Steadi® Orthotic Glove System in 2015. Each unique system is custom fabricated for the individual and is based on proven neurological principles. She is honored to collaborate care with movement disorder specialists and therapists throughout the country and remains dedicated to each individual fitted so they achieve maximum functional benefit.

Inquiries are invited!
Registration is required no later than noon on Wednesday, December 1st!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Mark Your Calendar for Our December Meeting!

Our next Essential Tremor Support Group meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, December 4th. As much as we’d love to meet in person, we’ll continue to monitor the situation closely and will likely meet via Zoom. Our speaker and topic will be announced shortly… but we do hope you’ll save the date and plan to join us!

Our Next Virtual Meeting is October 2nd. Please Join Us!

Saturday, October 2, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Diagnosis and Management of Essential Tremor:
The Method to the Madness!

presented by Movement Disorders Specialist Dr. Benjamin Dorfman

You won’t want to miss this presentation and discussion of how a movement disorders specialist determines that a patient has essential tremor vs other related issues, and how a course of treatment is determined!

Dr. Benjamin Dorfman is a board-certified movement disorders specialist at the Chase Family Movement Disorders Center, part of Hartford HealthCare. His areas of interest include Parkinson’s disease, essential tremor, deep brain stimulation, dystonia, facial spasm, spasticity, botulinum toxin injections, restless legs syndrome, gait disorders, myoclonus, tardive dyskinesia, and tics.

Dr. Dorfman received his medical degree from the Rutgers New Jersey Medical School in Newark, New Jersey, followed by neurology residency at the Albert Einstein College of Medicine in Bronx, New York and a movement disorders fellowship at the Icahn School of Medicine at Mount Sinai in Manhattan, New York. He has authored numerous publications on movement disorders and has a special interest in education.

A member of the American Academy of Neurology and the International Parkinson and Movement Disorders Society, Dr. Dorfman lives in West Hartford, Connecticut with his wife and two children.

Inquiries are invited!
Registration is required no later than noon on Wednesday, September 29th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save the Date for our Next Meeting!

Our next Essential Tremor Support Group meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, October 2nd. We’re hoping to finally meet in person again, but given the Delta variant, will monitor the situation closely. The speaker and topic will be announced shortly. We do hope you’ll save the date and plan to join us!

Join Us for Our August 7th Virtual ET Support Group Meeting!

Saturday, August 7, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Medications for Essential Tremor
presented by Movement Disorders Specialist Sulada Kanchana, M.D., Ph.D.

At this virtual meeting, Dr. Kanchana will review and discuss treatment options for the medical management of Essential Tremor.

Su Kanchana, M.D., Ph.D., a movement disorders specialist, is Director of Program Expansion & Outreach for Hartford HealthCare’s Chase Family Movement Disorder Center. She has special interests in Parkinson’s disease, Tremors, Deep Brain Stimulation (DBS), and Botulinum toxin therapy.

Before joining Hartford HealthCare, Dr. Kanchana was Co-Director of the Movement Disorders Program at SUNY Update Medical Center, Director of the Deep Brain Stimulation Program at Northwell Health in Long Island, Director of the Movement Disorders Program at Reading Hospital and Medical Center, and Co-Director of the Movement Disorders Program at Lehigh Neurology in Allentown, PA. While a member of the Movement and Inherited Neurological Disorders at the University of Rochester Medical Center, she was the founder and advisor of the Twin Tiers Parkinson Group in Big Flats, NY.

Dr. Kanchana earned Masters and Doctoral Degrees in biology and a Doctoral of Medicine at Wayne State University and School of Medicine. She completed a neurology residency at the University of Wisconsin-Madison, and a fellowship in movement disorders at the National Institute of Neurological Disorders and Strokes, National Institutes of Health (NIH).

Inquiries are invited!
Registration is required no later than noon on Wednesday, August 4th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule August 7th On Your Calendar!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, August 7th, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Please Join Us on June 5th for Our Next Virtual Meeting!

Saturday, June 5, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Neuropsychological Features of Essential Tremor
presented by Neuropsychologist Michelle Bobulinski Ph.D.

Over the past decade, there has been increasing evidence that Essential Tremor is associated with various non-motor clinical manifestations, including cognitive symptoms and neuropsychiatric symptoms or disorders, particularly involving depressed mood and anxiety. The reported prevalence estimates of neuropsychological symptoms varies, to some degree, in available literature, but overall it is suggested that mild-moderate cognitive deficits may be observed in approximately 50% of individuals diagnosed with ET. Research also demonstrates anxiety and depression are both more common in ET patients compared to normal controls. Individuals with ET report significant decline in the independent performance of both routine physical (e.g. self-care) and more complex activities of daily living, which may be a function of both motor and non-motor symptoms.

At this virtual meeting, Dr. Bobulinski will discuss the neuropsychological symptoms of ET and the importance of monitoring them as part of the clinical course.

Michelle Bobulinski, Ph.D., earned her undergraduate degree in Psychology at Bucknell University. After receiving graduate degrees at the University of Denver in Clinical/Counseling Psychology and at New York University in Psychology, Dr. Bobulinski completed an Internship in Clinical Psychology with a Specialty in Neuropsychology at the University of Kansas School of Medicine and a Fellowship in Clinical Neuropsychology at Yale University School of Medicine.

Currently working with Hartford HealthCare’s Ayer Neuroscience Institute, Dr. Bobulinski’s areas of interest include Neuropsychology, Movement Disorders, Neurologic and Neurodegenerative Disorders, Dementia, Mild Cognitive Impairment, Cognition/Neurocognitive Changes, Cognitive Assessment, Deep Brain Stimulation, and Behavioral Health.

A Licensed Psychologist in both CT and NY, she is a member of the National Academy of Neuropsychology, the American Academy of Clinical Neuropsychology, the New York Neuropsychology Group, the Connecticut Neuropsychology Society, and is a Research Associate Member of the American Academy of Neurology.

Inquiries are invited!
Registration is required no later than noon on Wednesday, June 2nd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save the Date!

Whether it’s to be in person or via Zoom …unfortunately that is still the question! It’s most likely to be another Zoom event for us, but in either case, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, June 5th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.

Join Us for a Virtual Meeting on Saturday, April 3rd!

Saturday, April 3, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Essential Tremor: Then and Now
presented by Movement Disorder Neurologist Dr. Jeffrey Lahrmann

At this virtual meeting, Dr. Lahrmann will discuss:

  • the history of essential tremor,
  • the history of the treatment of essential tremor, and
  • notable figures and celebrities with essential tremor.

Jeffrey Lahrmann, M.D., earned his Bachelor of Science degree in Molecular and Cellular Biology from the University of Connecticut. After graduating from St. George’s University of Medicine in 2015, he completed his preliminary internal medicine inter-year residency at St. John Hospital and Medical Center in Grosse Pointe, Michigan and Neurology training at Drexel University in Philadelphia, Pennsylvania.

Dr. Lahrmann completed his movement disorders fellowship at Hartford HealthCare and the University of Connecticut. Currently part of the Chase Family Movement Disorders team, he has a particular interest in essential tremor, Parkinson’s disease, and deep brain stimulation and sees patients at the Cheshire and Torrington offices.

A Connecticut native, Dr. Lahrmann grew up in Mansfield and then moved to Glastonbury with his family. Now living in West Hartford, he is a tennis player and fan, enjoys snowboarding, and can be found cycling in nice weather.

Inquiries are invited!
Registration is required no later than noon on Wednesday, March 31st!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

 

Mark Your Calendar for April 3rd!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, April 3rd, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!