Please Join Us for a Virtual Meeting on August 1st!

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Saturday, August 1, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

How New Drugs Are Developed, plus an
Update on an ET-specific drug tested in Clinical Trial
presented by Tim Piser, PhD and Amber Trzeciak, MS

Tim Piser, PhD, is the Chief Scientific Officer at Cadent Therapeutics. Tim earned his PhD in pharmacology from the University of Minnesota. He has passionately pursued the discovery and development of neuroscience therapeutics for almost two decades in big pharma and in biotech, most notably at AstraZeneca and FORUM Pharmaceuticals. There, he led neuropharmacology teams and both NDA and nicotinic receptor drug discovery projects and product development teams from lead optimization through Phase 2 trials. Tim leverages collaborative scientific insight and quantitative translational pharmacology to find innovative paths to discover and develop potential breakthrough medicines.

Amber Trzeciak, MS, is Cadent’s Patient Partnership and Advocacy Manager, as well as Executive Assistant to its R&D Department.

At this virtual meeting, Tim and Amber will educate us on how new drugs are created and developed. They will also give us a history of Cadent’s CAD-1883 (an ET-specific drug that has been tested in clinical trial), together with an update on this trial.

Inquiries are invited!
Registration is required no later than noon on Wednesday, July 29th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

We’re back on August 1st! …Virtually!

After the too-long hiatus created by Covid-19 and the need to cancel our large in-person meetings, we’ve decided to go virtual… and we have an exciting presentation scheduled for our August meeting!

Please plan to join us from 1:00-3:00 p.m. on Saturday, August 1st for our first Zoom meeting. If you haven’t used Zoom, don’t be intimidated by the thought of a virtual meeting. Zoom is easy to use and there are plenty of tutorials available online. You can even Google something like “Zoom for Beginners” or “Zoom for Dummies” if you want to keep the instructions short and simple…. and if you don’t have a camera on your computer, you can also participate by just calling in on your phone!”

…so please save the date and watch for details to be posted soon!

April 4th Meeting Rescheduled!

Please note that the word is RESCHEDULED, not cancelled!

With several cases of COVID-19 (Corona Virus) confirmed in Connecticut – and given our nation’s current state of emergency and CDC guidelines – we have rescheduled our April 4th meeting. (Because the ability to actually see and try the various state-of-the-art assistive devices currently available is so exciting, this agenda is far too important to simply cancel.)

Our June 6th meeting is already booked with another important agenda (details to be announced shortly) …so our Assistive Devices agenda will be rescheduled to our August 1st meeting.

Please be sure to mark your calendars for both June 6th and August 1st because you won’t want to miss either topic …and please stay safe and healthy!

April 4th: A Unique Meeting and a Special Opportunity!

You won’t want to miss our April 4th meeting….it’s a unique format and an awesome opportunity to literally see and try several different assistive devices!

Samples (and in some cases, reps) will be available from:

  1. LiftWare
  2. Tremelo
  3. Steadi-One Glove
  4. Cala Trio
  5. Steady Type
  6. plus a rep from Encora Inc, the group of MIT graduates who will be recruiting people in our area to participate in their study for the development of a new wrist device! (Although based in the Boston area, they are willing to schedule tests in Connecticut.)

…and we’re still working on trying (and hoping) to get participation from the Readi-Steadi glove.

After a brief presentation on all of the above devices, we’ll have each device (and a rep/facilitator) set up at different tables with plenty of time for each of you to have the opportunity to really try and determine which of these amazing developments might be appropriate and life changing for you!

Details of the meeting:

  • Date and time: Saturday, April 4th, 1:00-3:00 p.m.
  • Location: Main Floor Conference Room at Hartford HealthCare Health Center – Cheshire (this is not a hospital, but the beautiful new facility that houses the Cheshire offices of Hartford HealthCare’s Ayer Neuroscience Institute Movement Disorders Center as well as other outpatient programs)
  • Address: 280 South Main Street, Cheshire, CT 06410
  • Parking: large outdoor lot on premises
  • Click here for a map and driving directions

    Registration is requested – Inquiries are invited!

    To register or request information, email Helen Moser or submit the form below.

    The CT essential tremor support group is sponsored byIETF logo tagline 10162012

 

Please Join Us in Middletown on February 1st!

Saturday, February 1, 2020
1:00 – 3:00 p.m.

Middlesex Hospital’s Bardenheier Medical Training Center
28 Crescent Street
Middletown, CT 06457

The Association Between Essential Tremor & Parkinsonism
presented by Movement Disorders Specialist Elena Bortan, MD

In her presentation, Dr. Bortan will address the following questions:

  1. Is essential tremor predictive of Parkinson’s disease?
  2. What is epidemiological evidence between essential tremor and other neurodegenerative conditions?

Neurologist Elena Bortan is a movement disorders specialist with the Ayer Neuroscience Institute Chase Family Movement Disorders Center.

Dr. Bortan came to Hartford HealthCare from Middlesex Hospital, where she worked for almost a decade. She earned her medical degree from Davila University of Medicine and Pharmacy in Romania. She completed a residency in neurology at Tufts New England Medical Center and a fellowship in movement disorders at the Lahey Clinic.

Fluent in English and Romanian, Dr. Bortan’s areas of clinical interest are movement disorders including Parkinsonism, essential tremor and others; botulinum toxin chemodenervation for dystonia blepharospasm and spasticity; deep brain stimulation; and general neurology. She is board-certified in neurology and a member of the American Academy of Neurology and The Movement Disorder Society.

Additionally, Dr. Leo Nguyen’s team at Five Microns plans to give us a 10-minute video presentation on Tremelo, which uses vibration control techniques to steady a tremoring arm. Dr. Nguyen is an associate professor of mechanical engineering at California State University, Fresno.

Registration is requested – Inquiries are invited!

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

Parking:

  • Free on-site parking is available.

Directions:

FROM NORTH (HARTFORD)

Take I-91 South to Exit 22S, Route 9 South. Follow Route 9 through Middletown. Take Exit 13, Route 17. Continue straight to the intersection with Route 17, South Main Street. At the light, turn right onto South Main Street. Follow South Main Street to the intersection with Crescent Street. Turn right onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

FROM SOUTH (MERIDEN)

Take I-91 or Wilbur Cross Parkway to Route 691 East. Follow Route 691 (becomes Route 66) to Main Street, Middletown. Turn right onto Main Street. Continue down Main Street to the intersection with Pleasant Street. Turn right onto Pleasant Street, then bear left at the next light onto South Main Street. Turn left onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

FROM WEST

Take I-84 to Route 691 East. Follow Route 691 (becomes Route 66) to Main Street, Middletown. Turn right onto Main Street. Continue down Main Street to the intersection with Pleasant Street. Turn right onto Pleasant Street, then bear left at the next light onto South Main Street. Turn left onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

FROM NEW YORK/NEW HAVEN

Take I-95 to I-91 North. Change to Route 9 South toward Cromwell/Middletown. In Middletown, take Exit 13. Continue straight to the intersection with Route 17, South Main Street. At the light, turn right onto South Main Street. Follow South Main Street to the intersection with Crescent Street. Turn right onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

Please Join Us in Bridgeport on December 7th!

Saturday, December 7, 2019
1:00 – 3:00 p.m.

 St. Vincent’s Medical Center
2800 Main Street, Bridgeport, CT

Essential Tremor: Multiple Surgical Options
presented by Mohamad Khaled, MD, MSurg FAANS, AFACS

At this meeting, we will explore and discuss the multiple surgical options available for treating ET and stimulation versus lesioning. For stimulation, Dr. Khaled will present frame-based versus frameless. For lesioning, he will present radiofrequency ablation versus stereotactic radiosurgery versus MRI-guided Focused Ultrasound.

Mohamad Khaled, MD, MSurg, FAANS, AFACS, a Neurosurgeon and Spine Surgeon and Director of Quality at Hartford Healthcare’s Ayer Neuroscience Institute, is an author on the original New England Journal of Medicine paper from 2013 on Focused Ultrasound (which we’ve previously reviewed at our meetings). His highly specialized surgical skills include experience with frameless Deep Brain Stimulation for tremor.

Dr. Khaled comes to Hartford HealthCare from Baystate Health, where he was Director of Functional Neurosurgery and launched the Deep Brain Stimulation Program, the first of its kind in western Massachusetts. He was also an Assistant Professor of Surgery at the University of Massachusetts Medical Center-Baystate.

His areas of clinical interest include Deep Brain Stimulation; epilepsy surgery; cervical, thoracic and lumbar spine surgery, including minimally-invasive spine surgery; cervical spine deformity correction surgery and spine tumors; surgery for pain; and brain tumors. His research has included work on MRI-guided Focused Ultrasound lesioning in Deep Brain Stimulation and comparing radiofrequency, GammaKnife radiosurgery and Focused Ultrasound lesions in the brain.

Dr. Khaled, who is fluent in English and Arabic, earned his medical degree from Ain Shams University in Cairo, Egypt, and completed a residency at Wayne State University/Detroit Medical Center. He also completed fellowships in epilepsy surgery and pediatric neurosurgery at Cleveland Clinic. He is a member of the American Association of Neurological Surgeons and the Congress of Neurological Surgeons.

Registration is requested – Inquiries are invited!
To register or request information, email Helen Moser or submit the form below.

Click here for driving directions and parking information.

The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

St. Vincent’s Medical Center is conveniently located on Main Street, in Bridgeport’s residential north side neighborhood, with easy access from the Merritt Parkway (Route 15) and Interstate-95, as well as the Route 8 & 25 Connector.

  • From the Merritt Parkway:
    Take Exit 48 (Main Street); proceed 2.3 miles south to St. Vincent’s campus, on the left.
  • From I-95:
    Take Exit 27A onto the Route 8 & 25 Connector; take Exit 4 (Lindley St.); turn left onto Lindley and proceed three blocks to Hawley Ave.; turn left onto Hawley and the Medical Center entrance is on the right.
  • From the Route 8 & 25 Connector (southbound):
    Take Exit 5 (Boston Ave.); turn left at end of ramp and proceed to Summit St.; follow Summit to Main and turn left; Medical Center will be on the left.

Blue “H” hospital signs also lead to St. Vincent’s 10-story, white landmark building.

PARKING:

The Patient/Visitor Parking Garage located in front of the Medical Center.

  • Please bring your ticket in with you and have it processed at the Central Cashier located in the Main Lobby Patient Information Desk after the meeting.

Save the Date!

Our next meeting is scheduled for 1:00 – 3:00 p.m. on Saturday, December 7th, at St. Vincent’s Medical Center in Bridgeport. The speaker and topic will be announced shortly… but please save the date on your calendar!

Learn How Acupuncture Can Help ET at Our October 5th Meeting!

Saturday, October 5, 2019
1:00 – 3:00 p.m.

 The Hospital of Central Connecticut
100 Grand Street, New Britain, CT

ACUPUNCTURE AND ESSENTIAL TREMOR
presented by Edwin Brown, LAC

Our October 5th meeting will focus on acupuncture: its history and modern uses, as well as how acupuncture can be a valuable tool in specifically treating Essential Tremor.

Edwin Brown received his Masters in Acupuncture and Oriental Medicine from the New England School of Acupuncture (NESA). In addition to his own practice Healing Ways Acupuncture, Edwin has practicing privileges at Hartford Hospital through his affiliation with the Department of Integrative Medicine.

During his time at NESA, Edwin studied and gained clinical experience in the fields of Japanese acupuncture, Chinese acupuncture, and Chinese herbal medicine. He has spent the last 15 years working in both private clinical and hospital settings. In addition, Edwin spent more than 16 years studying the arts of Judo and Jiujitsu, as well as several years studying and practicing Tai Chi. A thorough understand of how the flow of energy (Ki) affects the body is a central and crucial aspect in both fighting and healing arts. Studying these disciplines has enabled Edwin to more thoroughly understand Ki and has thereby enhanced his ability to better serve his patients on their healing journeys, and on their paths back to realizing a more balanced life.

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

  • From Route 9:
    Take Exit 28 to Route 72 West.
    Take Corbin Avenue Exit (Exit 7).
    Turn left at end of ramp.
    Follow the blue hospital signs up the hill.
    Left onto Hart Street.
    Straight.
    Left onto Linwood Street.
    Take second right onto Grand Street.
    Garage entrance on right.
  • From I-84:
    Take Exit 35 to Route 72 East.
    Take Corbin Avenue Exit (Exit 7).
    Turn left at end of ramp.
    Follow the blue hospital signs up the hill.
    Left onto Hart Street.
    Straight.
    Left onto Linwood Street.
    Take second right onto Grand Street.
    Garage entrance on right.
  • The City parking garage immediately next to the hospital lobby is the most convenient place to park.