Join Us for Our August 7th Virtual ET Support Group Meeting!

Saturday, August 7, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Medications for Essential Tremor
presented by Movement Disorders Specialist Sulada Kanchana, M.D., Ph.D.

At this virtual meeting, Dr. Kanchana will review and discuss treatment options for the medical management of Essential Tremor.

Su Kanchana, M.D., Ph.D., a movement disorders specialist, is Director of Program Expansion & Outreach for Hartford HealthCare’s Chase Family Movement Disorder Center. She has special interests in Parkinson’s disease, Tremors, Deep Brain Stimulation (DBS), and Botulinum toxin therapy.

Before joining Hartford HealthCare, Dr. Kanchana was Co-Director of the Movement Disorders Program at SUNY Update Medical Center, Director of the Deep Brain Stimulation Program at Northwell Health in Long Island, Director of the Movement Disorders Program at Reading Hospital and Medical Center, and Co-Director of the Movement Disorders Program at Lehigh Neurology in Allentown, PA. While a member of the Movement and Inherited Neurological Disorders at the University of Rochester Medical Center, she was the founder and advisor of the Twin Tiers Parkinson Group in Big Flats, NY.

Dr. Kanchana earned Masters and Doctoral Degrees in biology and a Doctoral of Medicine at Wayne State University and School of Medicine. She completed a neurology residency at the University of Wisconsin-Madison, and a fellowship in movement disorders at the National Institute of Neurological Disorders and Strokes, National Institutes of Health (NIH).

Inquiries are invited!
Registration is required no later than noon on Wednesday, August 4th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Schedule August 7th On Your Calendar!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, August 7th, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Please Join Us on June 5th for Our Next Virtual Meeting!

Saturday, June 5, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Neuropsychological Features of Essential Tremor
presented by Neuropsychologist Michelle Bobulinski Ph.D.

Over the past decade, there has been increasing evidence that Essential Tremor is associated with various non-motor clinical manifestations, including cognitive symptoms and neuropsychiatric symptoms or disorders, particularly involving depressed mood and anxiety. The reported prevalence estimates of neuropsychological symptoms varies, to some degree, in available literature, but overall it is suggested that mild-moderate cognitive deficits may be observed in approximately 50% of individuals diagnosed with ET. Research also demonstrates anxiety and depression are both more common in ET patients compared to normal controls. Individuals with ET report significant decline in the independent performance of both routine physical (e.g. self-care) and more complex activities of daily living, which may be a function of both motor and non-motor symptoms.

At this virtual meeting, Dr. Bobulinski will discuss the neuropsychological symptoms of ET and the importance of monitoring them as part of the clinical course.

Michelle Bobulinski, Ph.D., earned her undergraduate degree in Psychology at Bucknell University. After receiving graduate degrees at the University of Denver in Clinical/Counseling Psychology and at New York University in Psychology, Dr. Bobulinski completed an Internship in Clinical Psychology with a Specialty in Neuropsychology at the University of Kansas School of Medicine and a Fellowship in Clinical Neuropsychology at Yale University School of Medicine.

Currently working with Hartford HealthCare’s Ayer Neuroscience Institute, Dr. Bobulinski’s areas of interest include Neuropsychology, Movement Disorders, Neurologic and Neurodegenerative Disorders, Dementia, Mild Cognitive Impairment, Cognition/Neurocognitive Changes, Cognitive Assessment, Deep Brain Stimulation, and Behavioral Health.

A Licensed Psychologist in both CT and NY, she is a member of the National Academy of Neuropsychology, the American Academy of Clinical Neuropsychology, the New York Neuropsychology Group, the Connecticut Neuropsychology Society, and is a Research Associate Member of the American Academy of Neurology.

Inquiries are invited!
Registration is required no later than noon on Wednesday, June 2nd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save the Date!

Whether it’s to be in person or via Zoom …unfortunately that is still the question! It’s most likely to be another Zoom event for us, but in either case, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, June 5th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.

Join Us for a Virtual Meeting on Saturday, April 3rd!

Saturday, April 3, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Essential Tremor: Then and Now
presented by Movement Disorder Neurologist Dr. Jeffrey Lahrmann

At this virtual meeting, Dr. Lahrmann will discuss:

  • the history of essential tremor,
  • the history of the treatment of essential tremor, and
  • notable figures and celebrities with essential tremor.

Jeffrey Lahrmann, M.D., earned his Bachelor of Science degree in Molecular and Cellular Biology from the University of Connecticut. After graduating from St. George’s University of Medicine in 2015, he completed his preliminary internal medicine inter-year residency at St. John Hospital and Medical Center in Grosse Pointe, Michigan and Neurology training at Drexel University in Philadelphia, Pennsylvania.

Dr. Lahrmann completed his movement disorders fellowship at Hartford HealthCare and the University of Connecticut. Currently part of the Chase Family Movement Disorders team, he has a particular interest in essential tremor, Parkinson’s disease, and deep brain stimulation and sees patients at the Cheshire and Torrington offices.

A Connecticut native, Dr. Lahrmann grew up in Mansfield and then moved to Glastonbury with his family. Now living in West Hartford, he is a tennis player and fan, enjoys snowboarding, and can be found cycling in nice weather.

Inquiries are invited!
Registration is required no later than noon on Wednesday, March 31st!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

 

Mark Your Calendar for April 3rd!

Save the date for our next Essential Tremor Support Group meeting which is scheduled for Saturday, April 3rd, from 1:00-3:00 p.m. via Zoom. Our speaker and topic will be announced shortly; and we do hope you’ll plan to join us!

Please Join Us For Our Virtual Meeting on February 6th

Saturday, February 6, 2021
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Meet Biotech Company Praxis…
and learn about Investigational Drug PRAX-944

presented by Gabriel Belfort M.D., Ph.D. and Lisa Huang, Ph.D.

At this virtual meeting, you will learn about Praxis, a biotechnology company studying an investigational treatment for Essential Tremor. PRAX-944 belongs to a new class of drugs called T-type calcium channel blockers. It has been shown to be effective in animal models of Essential Tremor by blocking calcium channels that are essential to the rhythmic brain activity that causes tremor activity. If PRAX-944 can similarly block T-type calcium channels in patients with ET, it is possible that the abnormal rhythmic activity in the brain – and the subsequent tremors – may improve! Studies with PRAX-944 in ET patients have been initiated. You won’t want to miss this meeting to learn more!

Gabriel Belfort, M.D., Ph.D., is a Senior Medical Director at Praxis and is responsible for the design, conduct, and data analysis of studies in the PRAX-944 Essential Tremor program. He has been in the industry for eight years and with Praxis for two. He received an M.D. and a Ph.D. from Boston University, residency training in neurology from the Beth Israel Deaconess Medical Center, and postdoctoral training from MIT. Gabi was involved in the development of Brexanolone, now FDA approved for the treatment of post-partum depression.

Lisa Huang, Ph.D. is the commercial lead for the PRAX-944 Essential Tremor program. She has been in the industry for eight years, where she founded a number of biotechs, such as Magenta, Gemini Therapeutics, and Q32 Bio Inc. to address diseases with high clinical need. A human geneticist by training, Lisa obtained her PhD Degree from Johns Hopkins.

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

 

Save the Date!

Whether it’s to be in person or via Zoom …that unfortunately is still the question! But in either event, we do hope you’ll plan to join us from 1:00 – 3:00 p.m. on Saturday, February 6th for our next CT Essential Tremor Support Group meeting. Details will be announced shortly.

Join Us on December 5th for Two Exciting Presentations via Zoom!

Saturday, December 5, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Advancing DBS Therapy to Treat Essential Tremor
presented by Movement Disorder Neurologist Dr. Drew Falconer
~and~
Steadi-Two, Steadiwear’s second-generation tremor stabilization device
presented by Steadiwear Founders Mark Elias and Emile Maamary

At this virtual meeting, Dr. Falconer will discuss the latest advancements to Abbott DBS and the innovations in the way the therapy is delivered and how it is controlled.

Dr. Drew Falconer is Board Certified in Neurology and is a fellowship-trained Movement Disorders Specialist at Georgetown University. Currently he serves as Co-Medical Director at the Inova Parkinson’s and Movement Disorders Center in Virginia. Dr. Falconer specializes in advanced care of patients with essential tremor, Parkinson’s Disease, and other movement disorders. He became interested in neurology and movement disorders after seeing the impact that quality, compassionate care combined with cutting-edge pharmacology and technology could have on a patient’s condition. His goal is to work with his patients to restore the quality of life they deserve.

~then~

Mark Elias and Emile Maamary will explain Steadiwear’s flagship product Steadi-One, an FDA registered Class I medical device that stabilizes the wrist joint for individuals with essential tremor. The battery-free Steadi-One technology was inspired by leading-edge earthquake dampers used in buildings.

Steadiwear Steadi-One Glove

…and present the Steadi-Two, a miniaturized version currently under development with very promising results! It is still battery-free and will be based on magnetic tuned damping technology, a novel class of stabilization systems. The system will weigh under 1 pound. A live demonstration of the Steadi-Two device will be conducted with a vibration simulator. PS: Mark and Emile will also announce plans for their Steadi-Two clinical trial, as well as an exciting opportunity for individuals who participate in its beta release!

Steadiwear Steadi-Two Glove

The Steadiwear Team: Mark Elias – CEO and Co-Founder – has a background in structural engineering and entrepreneurship, while Emile Maamary – CFO and Co-Founder – has a background in marketing and management. After being introduced as neighbors in 2014, the founders discovered that both their families suffer from tremors. A sense of compassion has united them and fueled their resolve to change the game for tremor sufferers by developing groundbreaking tremor stabilization technology. Both Mark and Emile have been working on Steadiwear full time since January 2016.

Inquiries are invited!
Registration is required no later than noon on Wednesday, December 2nd!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012