Please Join Us for Our Virtual Meeting on October 3rd!

Saturday, October 3, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

Updates on Essential Tremor
presented by Movement Disorder Neurologist Dr. Leon Meytin

At this virtual meeting, Dr. Meytin will discuss some of the new updates in essential tremor, including several clinical trials currently ongoing, as well as recently published data on non-invasive treatment for essential tremor.

Dr. Leon Meytin, MD, a Board Certified Neurologist, is a fellowship trained Movement Disorder Specialist at Hartford Healthcare. After graduating from West Virginia University School of Medicine, Dr. Meytin completed his neurology residency at Thomas Jefferson University in Philadelphia, PA, followed by a Movement Disorders Fellowship at Mount Sinai Beth Israel in New York, NY.

Dr. Meytin was recently hired by Hartford Healthcare to start a Movement Disorders Center in Stamford, CT as part of Hartford Healthcare’s comprehensive Chase Family Movement Disorders Center. He believes in the holistic approach to treatment, including utilizing physical/occupational therapy, exercise, acupuncture, and social work to treat the entirety of the patient. A member of the American Academy of Neurology and Movement Disorder Society, Dr. Meytin is also fluent in Russian.

Inquiries are invited!
Registration is required no later than noon on Wednesday, September 30th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

Save October 3rd in Your Calendar!

Whether it’s to be in person or via Zoom …that is the question! But in either case, please plan to join us from 1:00 – 3:00 p.m. on Saturday, October 3rd for our next Essential Tremor Support Group meeting. We’ll get details to you as soon as possible.

Please Join Us for a Virtual Meeting on August 1st!

Saturday, August 1, 2020
1:00 – 3:00 p.m.
Virtual Meeting via Zoom

How New Drugs Are Developed, plus an
Update on an ET-specific drug tested in Clinical Trial
presented by Tim Piser, PhD and Amber Trzeciak, MS

Tim Piser, PhD, is the Chief Scientific Officer at Cadent Therapeutics. Tim earned his PhD in pharmacology from the University of Minnesota. He has passionately pursued the discovery and development of neuroscience therapeutics for almost two decades in big pharma and in biotech, most notably at AstraZeneca and FORUM Pharmaceuticals. There, he led neuropharmacology teams and both NDA and nicotinic receptor drug discovery projects and product development teams from lead optimization through Phase 2 trials. Tim leverages collaborative scientific insight and quantitative translational pharmacology to find innovative paths to discover and develop potential breakthrough medicines.

Amber Trzeciak, MS, is Cadent’s Patient Partnership and Advocacy Manager, as well as Executive Assistant to its R&D Department.

At this virtual meeting, Tim and Amber will educate us on how new drugs are created and developed. They will also give us a history of Cadent’s CAD-1883 (an ET-specific drug that has been tested in clinical trial), together with an update on this trial.

Inquiries are invited!
Registration is required no later than noon on Wednesday, July 29th!

To register or request information, email Helen Moser or submit the form below.

The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

We’re back on August 1st! …Virtually!

After the too-long hiatus created by Covid-19 and the need to cancel our large in-person meetings, we’ve decided to go virtual… and we have an exciting presentation scheduled for our August meeting!

Please plan to join us from 1:00-3:00 p.m. on Saturday, August 1st for our first Zoom meeting. If you haven’t used Zoom, don’t be intimidated by the thought of a virtual meeting. Zoom is easy to use and there are plenty of tutorials available online. You can even Google something like “Zoom for Beginners” or “Zoom for Dummies” if you want to keep the instructions short and simple…. and if you don’t have a camera on your computer, you can also participate by just calling in on your phone!”

…so please save the date and watch for details to be posted soon!

April 4th Meeting Rescheduled!

Please note that the word is RESCHEDULED, not cancelled!

With several cases of COVID-19 (Corona Virus) confirmed in Connecticut – and given our nation’s current state of emergency and CDC guidelines – we have rescheduled our April 4th meeting. (Because the ability to actually see and try the various state-of-the-art assistive devices currently available is so exciting, this agenda is far too important to simply cancel.)

Our June 6th meeting is already booked with another important agenda (details to be announced shortly) …so our Assistive Devices agenda will be rescheduled to our August 1st meeting.

Please be sure to mark your calendars for both June 6th and August 1st because you won’t want to miss either topic …and please stay safe and healthy!

April 4th: A Unique Meeting and a Special Opportunity!

You won’t want to miss our April 4th meeting….it’s a unique format and an awesome opportunity to literally see and try several different assistive devices!

Samples (and in some cases, reps) will be available from:

  1. LiftWare
  2. Tremelo
  3. Steadi-One Glove
  4. Cala Trio
  5. Steady Type
  6. plus a rep from Encora Inc, the group of MIT graduates who will be recruiting people in our area to participate in their study for the development of a new wrist device! (Although based in the Boston area, they are willing to schedule tests in Connecticut.)

…and we’re still working on trying (and hoping) to get participation from the Readi-Steadi glove.

After a brief presentation on all of the above devices, we’ll have each device (and a rep/facilitator) set up at different tables with plenty of time for each of you to have the opportunity to really try and determine which of these amazing developments might be appropriate and life changing for you!

Details of the meeting:

  • Date and time: Saturday, April 4th, 1:00-3:00 p.m.
  • Location: Main Floor Conference Room at Hartford HealthCare Health Center – Cheshire (this is not a hospital, but the beautiful new facility that houses the Cheshire offices of Hartford HealthCare’s Ayer Neuroscience Institute Movement Disorders Center as well as other outpatient programs)
  • Address: 280 South Main Street, Cheshire, CT 06410
  • Parking: large outdoor lot on premises
  • Click here for a map and driving directions

    Registration is requested – Inquiries are invited!

    To register or request information, email Helen Moser or submit the form below.

    The CT essential tremor support group is sponsored byIETF logo tagline 10162012

 

Please Join Us in Middletown on February 1st!

Saturday, February 1, 2020
1:00 – 3:00 p.m.

Middlesex Hospital’s Bardenheier Medical Training Center
28 Crescent Street
Middletown, CT 06457

The Association Between Essential Tremor & Parkinsonism
presented by Movement Disorders Specialist Elena Bortan, MD

In her presentation, Dr. Bortan will address the following questions:

  1. Is essential tremor predictive of Parkinson’s disease?
  2. What is epidemiological evidence between essential tremor and other neurodegenerative conditions?

Neurologist Elena Bortan is a movement disorders specialist with the Ayer Neuroscience Institute Chase Family Movement Disorders Center.

Dr. Bortan came to Hartford HealthCare from Middlesex Hospital, where she worked for almost a decade. She earned her medical degree from Davila University of Medicine and Pharmacy in Romania. She completed a residency in neurology at Tufts New England Medical Center and a fellowship in movement disorders at the Lahey Clinic.

Fluent in English and Romanian, Dr. Bortan’s areas of clinical interest are movement disorders including Parkinsonism, essential tremor and others; botulinum toxin chemodenervation for dystonia blepharospasm and spasticity; deep brain stimulation; and general neurology. She is board-certified in neurology and a member of the American Academy of Neurology and The Movement Disorder Society.

Additionally, Dr. Leo Nguyen’s team at Five Microns plans to give us a 10-minute video presentation on Tremelo, which uses vibration control techniques to steady a tremoring arm. Dr. Nguyen is an associate professor of mechanical engineering at California State University, Fresno.

Registration is requested – Inquiries are invited!

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

Parking:

  • Free on-site parking is available.

Directions:

FROM NORTH (HARTFORD)

Take I-91 South to Exit 22S, Route 9 South. Follow Route 9 through Middletown. Take Exit 13, Route 17. Continue straight to the intersection with Route 17, South Main Street. At the light, turn right onto South Main Street. Follow South Main Street to the intersection with Crescent Street. Turn right onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

FROM SOUTH (MERIDEN)

Take I-91 or Wilbur Cross Parkway to Route 691 East. Follow Route 691 (becomes Route 66) to Main Street, Middletown. Turn right onto Main Street. Continue down Main Street to the intersection with Pleasant Street. Turn right onto Pleasant Street, then bear left at the next light onto South Main Street. Turn left onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

FROM WEST

Take I-84 to Route 691 East. Follow Route 691 (becomes Route 66) to Main Street, Middletown. Turn right onto Main Street. Continue down Main Street to the intersection with Pleasant Street. Turn right onto Pleasant Street, then bear left at the next light onto South Main Street. Turn left onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.

FROM NEW YORK/NEW HAVEN

Take I-95 to I-91 North. Change to Route 9 South toward Cromwell/Middletown. In Middletown, take Exit 13. Continue straight to the intersection with Route 17, South Main Street. At the light, turn right onto South Main Street. Follow South Main Street to the intersection with Crescent Street. Turn right onto Crescent Street. The entrance to the hospital and the Emergency Department are on Crescent Street.