Learn About Steadiwear at our June 7th Meeting!

Saturday, June 7, 2025
1:00 – 3:00 p.m.

Hartford HealthCare Facility
280 South Main Street

Cheshire, CT 06410

Steadiwear
presented by Emile Maamary

Steadiwear has developed a lightweight, battery-free glove designed to reduce hand tremors and help people regain control of everyday tasks like eating, drinking, and writing. This device offers a simple, noninvasive solution that improves the quality of life and confidence of 84% of people living with essential tremor.

Emile Maamary is the Co-Founder and Chief Marketing Officer of Steadiwear, a company dedicated to restoring independence to those living with Parkinson’s disease and essential tremor. Inspired by the struggles of his family members with tremors, Emile made it his mission to create accessible, non-invasive solutions. With over 10 years of experience with Steadiwear, Emile holds an Executive MBA from Cornell nd Queen’s University.

Inquiries are invited!
Registration is required no later than 5:00 p.m.
Wednesday, June 4th!

To register or request information,
email Helen Moser or submit the form below:

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The CT essential tremor support group is sponsored by

IETF logo tagline 10162012

We’re discussing an exciting digital solution for neuromuscular conditions on December 7th!

Saturday, December 7, 2024
1:00 – 3:00 p.m.

The Hospital of Central Connecticut
100 Grand Street
New Britain, CT 06050

JOGO
presented by Sanjai Murali

JOGO Health provides digital therapeutics for neuromuscular conditions:
  • Stroke Recovery (Dystonia and Spasticity)
  • Parkinson’s Tremors
  • Essential Tremors
  • Cerebral Palsy
  • Multiple Sclerosis (pain management, incontinence and neuro rehab)
  • Facial Palsy

At this meeting, we will learn how JOGO uses biofeedback [a type of mind-body technique you use to control some of your body’s functions, such as your heart rate, breathing patterns and muscle responses] to create neuroplasticity [the ability of the brain to form new connections and pathways and change how its circuits are wired].

Sanjai Murali, Founder and CEO of JOGO Health, Inc. worked with pioneers from NYU for over a decade to create a 21st-century version of EMG biofeedback modality – JOGO-Gx – that is enhanced by AI and easy to use for a variety of chronic pain disorders, incontinence, and movement disorders associated with stroke, Parkinson’s, and other neuromuscular disorders.

JOGO Health is backed by Mayo Clinic ventures. Sanjai brings extensive business development experience and general management experience in the technology business. In a prior life, he was part of the team that built the first payment application based on a smart chip.

Inquiries are invited!
Registration is required no later than
5:00 p.m. on Wednesday, December 4th
!

To register or request information, email Helen Moser
or submit the form below:

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IETF is coming to Connecticut!

The International Essential Tremor Foundation has just announced dates for their 2019 Essential Tremor Education Forums… and they’re coming to Hartford on Saturday, June 1st! You won’t want to miss this exciting event, so be sure to mark your calendars!

Save the date!

Our next Essential Tremor support group meeting is scheduled for June 3rd in Milford. Licensed Professional Counselor Lisa Taylor-Austin will facilitate a discussion on coping with the emotional aspects of ET. Details will be published shortly.

Join us in Milford on August 6th!

Saturday, August 6, 2016
1:00 – 3:00 p.m.

 Milford Hospital
300 Seaside Avenue
Milford, CT 06460

Managing the Emotional Aspects of Essential Tremor
facilitated by Lisa Taylor-Austin, NCC, LPC, LMHC, CFMHE

Lisa Taylor-Austin is a Licensed Professional Counselor, National Certified Counselor, Licensed Mental Health Counselor, and a National Certified Forensic Mental Health Evaluator. Lisa holds a Master of Science in Counseling from SUNY Brockport (CACREP accredited) and a Bachelor of Science in Developmental and Behavioral Disabilities. Additionally, she completed post-masters coursework in counseling, education, gangs and substance abuse at SUNY Brockport, California State University at Los Angeles, Loyola Marymount University, and the University of New England. Lisa has been an instructor at Yale University, Loyola Marymount University and the University of Southern California.

Registration is requested – Inquiries are invited!

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

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DRIVING DIRECTIONS & PARKING:

Parking:

  • Free parking lot

Directions:

FROM HARTFORD REGION AND POINTS NORTH

  • Take I-91 South to I-95 South to Exit 36 (Plains Road).
  • At the end of the ramp turn left and follow blue Hospital signs.

FROM FAIRFIELD COUNTY AND POINTS SOUTH

  • Take I-95 North to Exit 36 (Plains Road).
  • At the end of the ramp, turn right and follow blue Hospital signs.

FROM MERRITT/WILBUR CROSS PARKWAYS AND POINTS NORTH

  • Take Exit 54 to I-95 South.
  • Take I-95 South to Exit 36 (Plains Road).
  • At the end of the ramp turn left and follow blue Hospital signs.

FROM MERRITT/WILBUR CROSS PARKWAYS AND POINTS SOUTH

  • Take Exit 54 to I-95 South.
  • Take I-95 South to Exit 36 (Plains Road).
  • At the end of the ramp turn left and follow blue Hospital signs.

Live DBS Surgery to air on television!

The National Geographic Channel has announced plans to air Deep Brain Stimulation surgery LIVE for the first time ever at 9:00 p.m. on Sunday, October 25th! Check your cable TV provider for the correct channel number. (It’s 162 on Cablevision).

Save the date!

Our next CT Essential Tremor Support Group meeting is scheduled for Saturday, April 4th, 1:00-3:00 p.m. in Guilford. Mark your calendar! Details will be announced within the next few days.

Please join us for our August 2nd meeting: Can Nutrition Help ET?

Saturday, August 2, 2014
1:00 – 3:00 p.m.

 Essex Library
33 West Avenue, Essex, CT

CAN TARGETED NUTRITION HELP ESSENTIAL TREMORS?
presented by Dr. Constance Green

Dr. Constance Greene has a Doctoral and Masters degree in Counseling and Clinical Nutrition and a Baccalaureate in Nursing . A practicing Certified Holistic Nurse in private practice, she is Board Certified in Integrative Medicine. Dr. Greene is also a licensed and credentialed Registered Nurse, Dietitian, Functional Nutritionist, and Nurse Amma Therapist, who has received the prestigious Clinician’s Forum Award from the Community Health Center Practitioners of New England as an Outstanding Provider of the Year.

Registration is requested – Inquiries are invited!

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

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DRIVING & PARKING:

  • The library has a small parking lot …but there is plenty of parking available at the Essex Town Hall directly across the road.
  • Use the map and links below to get directions from your location:

Essential tremor in the media!

Because ET has no celebrity spokesperson and rarely receives media coverage, people living with essential tremor often experience embarrassment and frustration in public venues and social situations. Lack of public awareness of the condition leads people to assume our tremors are caused by anxiety or nervousness, drug withdrawal, alcoholic DT’s, etc. It’s encouraging to see some mention of essential tremor beginning to creep into the media:

Share these links on social media and help us spread the word!

 

Save the date!

Put it in your calendar! Our next meeting is Saturday, June 7th, from 1:00-3:00 p.m. in Orange. Details will be announced shortly.