Focused ultrasound was featured at our June 7th meeting.

Our June 7th meeting was well attended by a wonderful group of people living with essential tremors from all over the state. An informed discussion of serious medical research was interspersed with heartwarming support and humor.

Movement disorders specialist Dr. Duarte Machado presented a detailed report on the pilot study of focused ultrasound thalamotomy for essential tremor from the 2014 American Academy of Neurology meeting. We also talked about other research projects that members are participating in or aware of.

Participation in the NBC Connecticut Health & Wellness Festival at the CT Convention Center on Saturday and Sunday, September 27th and 28th was discussed, as were speakers for future meetings, outreach to neurologists throughout Connecticut, increasing public awareness of essential tremors, and suggestions for the 2015 March is Essential Tremor Month activities.

If you missed our June meeting in Orange, we do hope you’ll join us on August 2nd in Essex!

Join us on June 7th for our next essential tremor support group meeting!

Saturday, June 7, 2014
1:00 – 3:00 p.m.

 Case Memorial Library
176 Tyler City Road, Orange, CT
[conveniently located between the Merritt/Wilbur Cross and I-95]

UPDATES IN ESSENTIAL TREMOR FROM THE
2014 AMERICAN ACADEMY OF NEUROLOGY ANNUAL MEETING

Registration is requested – Inquiries are invited!

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions.

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The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING DIRECTIONS TO CASE MEMORIAL LIBRARY:

From the Merritt Parkway (either direction):
Exit 57 East (towards New Haven)…at first light on Route 34
turn right onto Orange Center Road (Route 152). Go about 1-1/2
miles, take a left onto Tyler City Road and the Library will be
on the right.

I-95 from New Haven:
Exit 41. Go right at end of ramp onto Marsh Hill Road. At first
light Marsh Hill Road becomes Lambert Road. Continue to second
light on Lambert. Go left onto Route 1 then right at next light
onto Route 152 (Orange Center Road). Go about one mile and take
a right onto Tyler City Road (across from the Green). The Library
will be on the right.

I-95 from Bridgeport:
Exit 41. Go left at end of ramp onto Marsh Hill Road. At first light
Marsh Hill becomes Lambert Road. Continue to second light. Go left
onto Route 1 then right at next light onto Route 152 (Orange Center
Road). Go about one mile and take a right onto Tyler City Road (across
from the Green). The Library will be on the right.

From New Haven (Rt. 34):
Left on Orange Center Road to center of town (about 1 1/2 miles).
Left on Tyler City Road. Landmarks: the Congregational Church and
Town Hall are at the Tyler City Road intersection. Turn left onto
Tyler City Road. The Library is on the right.

From the Valley (Rt. 34):
Right on Orange Center Road to center of town. Left on Tyler City
Road. Landmarks: the Congregational Church and Town Hall are at
the Tyler City Road intersection. Turn left onto Tyler City Road.
The Library is on the right

Save the date!

Put it in your calendar! Our next meeting is Saturday, June 7th, from 1:00-3:00 p.m. in Orange. Details will be announced shortly.

Another great meeting!

In line with our commitment to alternate locations throughout the state, our April essential tremor support group met in the town of Portland. 21 people from throughout Connecticut participated. Everyone had the opportunity to test the difference between using a standard soup spoon, a Chinese soup spoon, and the state-of-the art LiftWare spoon to bring pasta from bowl to mouth! Some of the results were remarkable.

Dr. Machado again graciously responded to medical questions throughout the meeting. Current research projects were discussed. We also talked about ways to spread ET awareness. Our group will participate in the NBC Connecticut Health & Wellness Festival at the CT Convention Center on Saturday and Sunday, September 27th and 28th. Planning a walk for next year’s ET Month (March 2015) was discussed as well.

The camaraderie and support among group members is truly heartwarming. If you missed our meeting last Saturday, please join us on June 7th in Orange!

NPR airs an essential tremor story!

Shari Finsilver (an International Essential Tremor Foundation Board Member and past president) was interviewed by Michelle Trudeau, Health Reporter from NPR. It is a great spot that aired this morning on Morning Edition. Click here to listen to the interview online.

Join us for our next ET Support Group Meeting: April 5th in Portland, CT

Saturday, April 5, 2014 ~ 1:00 p.m. to 3:00 p.m.

Portland Library, 20 Freestone Avenue, Portland, CT 06480

Registration is requestedInquiries are invited!
Friends and family are welcome.

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions.

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The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING DIRECTIONS TO THE PORTLAND LIBRARY:

Click here for directions from Google maps.

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Participate in an important medication and ET survey!

The International Essential Tremor Foundation is conducting a very important medication and essential tremor survey. It takes just a moment to complete this short survey about your essential tremor diagnosis and treatment …and your response is critical to helping IETF obtain accurate information. Click here to participate.

Governor Dannel Malloy Proclaims March as Essential Tremor Month in Connecticut!

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March is Essential Tremor Month!

In December 2010, the United States House of Representatives formally passed House Resolution (H.RES.) 1264 officially designating March as National Essential Tremor Awareness Month. This resolution was cosponsored by a bipartisan group of 56 Representatives. If you’d like to help raise essential tremor awareness in your community, click here for more information.

Our February meeting was a definite success!

23 people from all over Connecticut attended our second essential tremor support group meeting!

After brief introductions, our discussion focused on coping with our ET. Everyone generously shared their experiences and the diverse tools and methods that work for them.

In addition to responding to questions as they arose, our group’s Medical Director, Dr. Duarte Machado, conducted an informative Q&A session. Dr. Machado also discussed some of the current clinical trials.

Because group members travelled from different areas of the state, we talked about future meeting locations. Our next meeting (April 5th) will be held in Portland. In June, we’ll be back in New Haven County (Milford or Orange) to accommodate a highly credentialed speaker. Then, in August, we’re working on a location in either Groton or Essex.

Topics for future meetings were also discussed …as was March is Essential Tremor Month.

If you missed our February meeting, please join us in Portland on April 5th!