The essential tremor registry is a simple – yet powerful – way ET patients can help the research community. A few minutes of your time assists in the creation of a comprehensive database of ET patients that helps researchers better understand the condition. When you register and opt in, your de-identified medical information (meaning it does not include any identifying information) is pooled with information from all other participants. You continue to own your data, and you can opt out at any time. What an easy way to contribute to essential tremor research efforts! Click here to learn more about the IETF essential tremor national registry …or here to participate.

On Saturday, October 12th, Connecticut Support Group Leader Helen Moser and her husband visited the Rhode Island ET support group at the invitation of RI Group Leader Rick Anderson. Rick led a lively discussion about a recent webinar conducted by the International Essential Tremor Foundation (IETF). A handSteady cup with a rotatable handle was available at the meeting, and everyone was able to test it out. The new LiftWare spoon was also discussed. [Click here to learn about this LiftWare product.] Sharing 2 hours with this delightful group of others living with ET was a fun, educational, and heartwarming experience. We left feeling very excited about holding our first meeting in Connecticut!

Everyone living with essential tremor is welcome to attend …including family members and friends! The date and location of our first meeting will be announced shortly.

While our site is under construction, please use the form below to be added to our email list or to request additional information.

For more information on essential tremor, visit www.essentialtremor.org