Join us in Waterbury October 4th for our next support group meeting!

Saturday, October 4, 2014
1:00 – 3:00 p.m.

 Waterbury Hospital
64 Robbins Street, Waterbury, CT 06721

Treating ET with Botox
presented by Duarte Goncalves Machado, MD

Dr. Machado, an Assistant Professor of Neurology, Yale School of Medicine, and Lead Neurologist, Yale Health Center, will discuss the use of Botulinum toxin as a treatment option for essential tremor

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions and parking information.

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The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING & PARKING:

  • The hospital has a large free parking lot

From Route 84 – Eastbound from New York or Danbury area
Exit 18 (Chase Parkway). Turn right and go to the first traffic light. Then turn right and go to the next light. Turn right (this is West Main Street). Take the second left onto Robbins Street for 1/2 mile. Hospital is on the left.

From Route 84 – Westbound from Hartford area
Exit 18 (Highland Avenue/West Main Street). Take fork to West Main Street. Turn right (this is West Main Street). Take the first left onto Robbins Street for 1/2 mile. Hospital is on the left.

From Route 8 – Northbound from Naugatuck or Bridgeport area
Exit 32 (Downtown Waterbury). Continue straight through second light (West Main Street) moving into the far left lane, bear left under underpass to stop sign (Watertown Ave). Go straight up hill (Robbins Street). Hospital entrance is next right.

Route 8 – Southbound from Watertown, Thomaston or Torrington
Exit 34 (West Main Street/Downtown Waterbury exit). Take a right at the end of the exit onto West Main Street. Take the first right onto Colley Street (this is a one-way street). Hospital is straight ahead, on Robbins Street.

We hope to meet you at the fair!

Visit our booth (#N32) at the NBC CT Health & Wellness Festival
Saturday, September 27th & Sunday, September 28th
at the Connecticut Convention Center in Hartford

health_fair_booth

Essential tremor in the media!

Because ET has no celebrity spokesperson and rarely receives media coverage, people living with essential tremor often experience embarrassment and frustration in public venues and social situations. Lack of public awareness of the condition leads people to assume our tremors are caused by anxiety or nervousness, drug withdrawal, alcoholic DT’s, etc. It’s encouraging to see some mention of essential tremor beginning to creep into the media:

Share these links on social media and help us spread the word!

 

Focused ultrasound was featured at our June 7th meeting.

Our June 7th meeting was well attended by a wonderful group of people living with essential tremors from all over the state. An informed discussion of serious medical research was interspersed with heartwarming support and humor.

Movement disorders specialist Dr. Duarte Machado presented a detailed report on the pilot study of focused ultrasound thalamotomy for essential tremor from the 2014 American Academy of Neurology meeting. We also talked about other research projects that members are participating in or aware of.

Participation in the NBC Connecticut Health & Wellness Festival at the CT Convention Center on Saturday and Sunday, September 27th and 28th was discussed, as were speakers for future meetings, outreach to neurologists throughout Connecticut, increasing public awareness of essential tremors, and suggestions for the 2015 March is Essential Tremor Month activities.

If you missed our June meeting in Orange, we do hope you’ll join us on August 2nd in Essex!

Join us on June 7th for our next essential tremor support group meeting!

Saturday, June 7, 2014
1:00 – 3:00 p.m.

 Case Memorial Library
176 Tyler City Road, Orange, CT
[conveniently located between the Merritt/Wilbur Cross and I-95]

UPDATES IN ESSENTIAL TREMOR FROM THE
2014 AMERICAN ACADEMY OF NEUROLOGY ANNUAL MEETING

Registration is requested – Inquiries are invited!

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions.

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DRIVING DIRECTIONS TO CASE MEMORIAL LIBRARY:

From the Merritt Parkway (either direction):
Exit 57 East (towards New Haven)…at first light on Route 34
turn right onto Orange Center Road (Route 152). Go about 1-1/2
miles, take a left onto Tyler City Road and the Library will be
on the right.

I-95 from New Haven:
Exit 41. Go right at end of ramp onto Marsh Hill Road. At first
light Marsh Hill Road becomes Lambert Road. Continue to second
light on Lambert. Go left onto Route 1 then right at next light
onto Route 152 (Orange Center Road). Go about one mile and take
a right onto Tyler City Road (across from the Green). The Library
will be on the right.

I-95 from Bridgeport:
Exit 41. Go left at end of ramp onto Marsh Hill Road. At first light
Marsh Hill becomes Lambert Road. Continue to second light. Go left
onto Route 1 then right at next light onto Route 152 (Orange Center
Road). Go about one mile and take a right onto Tyler City Road (across
from the Green). The Library will be on the right.

From New Haven (Rt. 34):
Left on Orange Center Road to center of town (about 1 1/2 miles).
Left on Tyler City Road. Landmarks: the Congregational Church and
Town Hall are at the Tyler City Road intersection. Turn left onto
Tyler City Road. The Library is on the right.

From the Valley (Rt. 34):
Right on Orange Center Road to center of town. Left on Tyler City
Road. Landmarks: the Congregational Church and Town Hall are at
the Tyler City Road intersection. Turn left onto Tyler City Road.
The Library is on the right

Save the date!

Put it in your calendar! Our next meeting is Saturday, June 7th, from 1:00-3:00 p.m. in Orange. Details will be announced shortly.

Another great meeting!

In line with our commitment to alternate locations throughout the state, our April essential tremor support group met in the town of Portland. 21 people from throughout Connecticut participated. Everyone had the opportunity to test the difference between using a standard soup spoon, a Chinese soup spoon, and the state-of-the art LiftWare spoon to bring pasta from bowl to mouth! Some of the results were remarkable.

Dr. Machado again graciously responded to medical questions throughout the meeting. Current research projects were discussed. We also talked about ways to spread ET awareness. Our group will participate in the NBC Connecticut Health & Wellness Festival at the CT Convention Center on Saturday and Sunday, September 27th and 28th. Planning a walk for next year’s ET Month (March 2015) was discussed as well.

The camaraderie and support among group members is truly heartwarming. If you missed our meeting last Saturday, please join us on June 7th in Orange!

NPR airs an essential tremor story!

Shari Finsilver (an International Essential Tremor Foundation Board Member and past president) was interviewed by Michelle Trudeau, Health Reporter from NPR. It is a great spot that aired this morning on Morning Edition. Click here to listen to the interview online.

Join us for our next ET Support Group Meeting: April 5th in Portland, CT

Saturday, April 5, 2014 ~ 1:00 p.m. to 3:00 p.m.

Portland Library, 20 Freestone Avenue, Portland, CT 06480

Registration is requestedInquiries are invited!
Friends and family are welcome.

To register or request information, email Helen Moser or submit the form below.
Click here for driving directions.

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The CT essential tremor support group is sponsored byIETF logo tagline 10162012

DRIVING DIRECTIONS TO THE PORTLAND LIBRARY:

Click here for directions from Google maps.

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Participate in an important medication and ET survey!

The International Essential Tremor Foundation is conducting a very important medication and essential tremor survey. It takes just a moment to complete this short survey about your essential tremor diagnosis and treatment …and your response is critical to helping IETF obtain accurate information. Click here to participate.